Hope For Dante'

Dante' Herrera is a wonderful 12 year old boy who has been battling an unknown disease throughout his life... Dante' and his family have traveled from hospital to hospital since he was about 1 year old and after many years of searching, he was recently diagnosed with a rare terminal genetic disease called neuronal ceroid lipofuscinosis (often, though incorrect, given an umbrella term of batten disease). although there are many known forms of ncl with gene explanations, the form that Dante' suffers from is even more rare, in that, to date, there is no gene explanation.

His insurace company, Optima Health has repeatedly denied care for Dante' at any out-of-network Batten Disease Centers of Excellence, because (in their words), "he's terminal, so why should we pay for it?" 

There are only about 5 Batten Centers in the U.S. and a few out of the country, none of which are in Virginia or the surrounding areas where Dante' lives.

Dante', his mother Marlo, and his network of family, friends and a wonderful network of healthcare professionals are dedicated and ready to fight this disease with all their might, but will need some help. please give what you can as all donations are greatly appreciated... all proceeds will go towards Dante's expenses, treatments, hospital stays and travel to various out-of-network facilities. your generosity is very much appreciated.
Love, Dante', Marlo, family and friends