NOTE: The PayPal account associated with this page is in my mother (Jazir's Nanny), Margaret Barton's name.
My name is Lara Marjerrison. I live in Toronto, Ontario, CANADA. I am the mother of a darling seven year old boy, named Jazir, who suffered a TMI (traumatic brain injury) at age 2.5 years. Initially he presented with Epilepsy only, which we have treated and successfully controlled. Recently, however, his revised and more accurate diagnosis of CVI (Cortical Visual Impairment) and Visual Agnosia has continued to mystify his Neurologist in that it continues to worsen and debilitate him further.
My son has regressed to the point that he is now legally blind. His eyes are completely healthy and functional but his brain does not process or recognize what he is looking at. He has lost all ability to see faces, including mine and his dads and relies wholly on the sound of our voices to identify us. He can no longer identify every day objects, has lost his ability to differentiate colours and now struggles to dress himself because he cannot recognize different articles of clothing nor determine what their function is. He is disoriented and gets lost or confused even at the simplest task, such as getting himself from his bedroom to his bathroom. He cannot be out in the world without holding the hand of an adult, it's not safe for him. He doesn't recognize where curbs become roads, where edges drop off. We must be on alert for his safety at all times. He is now beginning to struggle to eat properly. His condition is deteriorating rapidly and he is losing more and more of his independence. Every day offers a new challenge as we strive to adapt. He presents much like a little boy trapped inside an Alzheimer's riddled mind. He becomes more reclusive, frustrated and anxious as time passes.
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