Ursula had a 4.5 cm large tumor - which is large - on the right side of her brain, on the rear, pushing against the cerebellum - the small brain - and pressing against the brain stem. The cerebellum controls speech, motor function, swallowing, cheek, eyes etc.
Ursula survived the surgery, but now the road to recovery is long and is requiring full time care of Michael John and Cerridwen in BC Children's Hospital. They are far from home as they reside on Hornby Island.
Ursula has suffered paralysis of her right vocal cord and cannot eat or drink; she is being fed from a tube. She also has some voice loss. It is our hope that this will be a temporary setback.
Words from Michael John:
Taking care of her is a full time job between the two of us. We need to spell each other off in order to take short breaks for food, etc. We are dealing with doctors from neurosurgery, from oncology, remedial therapy, etc. we have nurses constantly wanting to check on her stats, to give her meds, to change her feeding bag, etc.
She has paralysis of her right vocal cord, she cannot eat or breast feed and has to be fed through a tube. She will be undergoing a series of tests pertaining to her paralysis, she may have a feeding tube inserted through her tummy; she will need some therapy for loss of muscle use, The oncology and neurology board meets on Thursday at which point they will decide on a course to treat the cancer, which will be likely be either chemotherapy or radiation therapy. There is the possibility that the meeting will be pushed back until next Thursday, if we do not receive the final biopsy reports before tomorrow afternoon.
Please help this beautiful family take care of their little baby girl , themselves and their other 2 young children
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