On May 14th my dearest Uncle Orly had and unexplained seizure at work. For what seemed to be the longest month we didn't have any answers. For that month we knew we were simply dealing with a tumor, but we were never prepared for the news we received on the 21st of June. The 21st of June will forever be the day that our lives changed when Uncle Orly was diagnosed with a GBM Brain Tumor on the right side of his brain. The neurosurgeon was very meticulous during surgery to not interefere with his motor functions that were controlled by the nerves where the tumor resided. It was important to Dr. Wolfe to keep his quality of life intact. Anyone who knows Orly knows this is not his first brain surgery. He survived a near fatal car accident when he was 17 when he flipped in a car. Everyone is still amazed he walked away from that one. If anyone can kick Brain Cancer, it is Orlando Perez! He will do it with that smile we all know and love while shooting his victory sign!
After completion of the first surgery on the 28th of June we were very hopeful. He seemed to bounce back in true Orly fashion and four days after surgery went to his favorite place, the beach, with stitches and staples in his head. We had a great time on July 4th while Orly was taking care of everyone and ensuring we had everything we needed for a good time.
Reality however, has set in, and not only is cancer evil, but it is expensive! Evie is working hard and needs help to fund the expensive medicine that needs to be taken in conjuction with his chemo treatments which is supposed to start on Tuesday, the 17th. If we can't raise the funds his chemo treatments may be delayed. The chemo treatments are extensive and need to be started as soon as possible. Orly will be undergoing chemo 5 days a week for six weeks! When the first round is complete he will then have to fight with IV chemo as well.
Orlando's family is praying that everyone can help Orlando continue to "Feel the Power" and help him with the biggest fight of his life. If anyone can beat the odds it is Uncle Orly. All his friends and family can share an Orly story or two that adds to his charasmatic personality. He is the life of the party and all of his family and friends would love to see him enjoy his time with his precious family. Orly still has a lot of life to live and he has just started on the adventure. He will celebrate his fourteenth wedding anniversary with his wife Evie in September. They traveled seperate paths from their earlier days in high school to realize that they truly are soul mates. I can still hear their wedding song "You're Still the One" from Shania Twain playing in the background. The two of them still have so many memories they need to make together with their ten year old daughter, Nicole, and his amazing step son Mike.
He waited nearly forty years to be honored with the title "Daddy" when she was born. His beautiful, kind-hearted, sweet daughter was honestly worth the wait. She loves her daddy with all her heart and to forecast the road ahead for her is just heartbreaking. Nicole or "Collie" has a smile that can brighten any room. It is the same smile of my Uncle Orly and to see how he lights up in her presence is truly beautiful.
Please help them make some more beautiful memories!!
- Ron & Susan Spiegel
- Julie Wilson Watson
Cristina Diaz Vaulk