Help our brother go to Worlds

He races to save us...
My fraternal twin brother, Jared, is always raising money to help save our lives. My little sister, Lexi, and I both have GAN, a rare, fatal genetic disease and ever since we were diagnosed 4 years ago, Jared has raced to raise money for research for a cure. (He did his 1st 1/2 ironman distance race, Oilman Texas, at age 12 in our honor). This video explains the disease and how he races to help us. And here is a recent article that was written about us.

The 3 of us after he finished his 1st 70.3 in 2013

2017 Xterra Worlds in Maui...
He found out in August that he was the South Central Regional (7 states) Xterra Champion for his age group and so qualified for a spot at Xterra Worlds in Maui where he competed at the end of October (check out this video of last year's race). My mom and dad told him he could go, but he'd need to find a way to pay for it himself. He called our aunt and uncle who live in Seattle and talked them into coming with him and then he called our other aunt and uncle and asked if he could borrow/buy airline miles. He paid his entry fee with the money he earned from his job this summer. His bike didn't arrive with him so he learned alot about dealing with lost luggage...
Here is a picture of him right before the finish line. 
He is in the bottom left hand corner of this picture heading back into the ocean for his 2nd lap of the swim.

2018 ITU Worlds in Denmark.
He also qualified for the 2018 ITU Worlds in both Cross-Tri and Aqualthlon. Those races are next summer in Denmark and in order to go, he'll also have to pay for it himself, since we couldn't drive there. (Mom drove him to Canada this summer and he competed on Team USA at ITU Worlds). He'll have to pay for the entry fees, flights and hotel since he will probably be going by himself. If you have miles you would like to donate, that would be helpful. We are so proud of him for helping and would love for him to be able to go (if he helps spread the word about GAN along the way, that would be cool too). Jared loves to race and has used it as a way to support us for GAN, it would be great if you could help him achieve these dreams. Anything will help him get there.

Thanks, Justin (17) & Lexi Clark (12)


Jared placed 2nd (AG) at Off-Road Triathlon Nationals which qualified him for 2018 Worlds in Cross-Tri