Help Jordan Donovan fight PNH
Donation protected
Hi, my name is Annie Childs.
On June 3rd, 2022, my husband, Donovan, was hospitalized due to extreme shortness of breath.
Upon admission to the emergency room, they found that his hemoglobin count was at 2.8 (it should be at 15) and his blood platelet count was at 17 (it should be 160). The doctor advised that these numbers are not compatible with life and this was extremely serious. After 6 blood transfusions they were able to get his hemoglobin to 7.5. He endured a bone marrow biopsy and after 6 days in the hospital, Donovan was diagnosed with PNH (Paroxysmal Nocturnal Hemoglobinuria) and Aplastic Anemia. This diagnosis means that Donovan’s body is not able to produce new blood on its own.
He will be receiving a treatment that will cost $400,000/ year while he awaits a bone marrow transplant. PNH is extremely rare as only 1 in 1,000,000 people are diagnosed with this disease, and left untreated is fatal.
Due to the seriousness of this disease, Donovan cannot get so much as a fever without serious implications. Donovan was the main caretaker of Mason and Luna during the day while I work and vice versa when he works at night. Unfortunately, with this diagnosis, at this time he is both unable to work and unable to care for the kids.
We will be using any money raised towards monthly expenses, doctor’s visit copays and prescription copays.
Any help would be much appreciated and we will keep you all updated as we know more.
Upon admission to the emergency room, they found that his hemoglobin count was at 2.8 (it should be at 15) and his blood platelet count was at 17 (it should be 160). The doctor advised that these numbers are not compatible with life and this was extremely serious. After 6 blood transfusions they were able to get his hemoglobin to 7.5. He endured a bone marrow biopsy and after 6 days in the hospital, Donovan was diagnosed with PNH (Paroxysmal Nocturnal Hemoglobinuria) and Aplastic Anemia. This diagnosis means that Donovan’s body is not able to produce new blood on its own.
He will be receiving a treatment that will cost $400,000/ year while he awaits a bone marrow transplant. PNH is extremely rare as only 1 in 1,000,000 people are diagnosed with this disease, and left untreated is fatal.
Due to the seriousness of this disease, Donovan cannot get so much as a fever without serious implications. Donovan was the main caretaker of Mason and Luna during the day while I work and vice versa when he works at night. Unfortunately, with this diagnosis, at this time he is both unable to work and unable to care for the kids.
We will be using any money raised towards monthly expenses, doctor’s visit copays and prescription copays.
Any help would be much appreciated and we will keep you all updated as we know more.
Organizer
Annie Childs
Organizer
Minneapolis, MN