Harrison Williams' Fund
Donation protected
Hi I'm Linda. I am a very proud mum to two great kids. My husband and I blessed to have them. In between their births we sadly lost our newborn son Joshua and at 21 weeks pregnant we lost our daughter Kaylee. I am more aware than I would have been what a wonder and a privilege it is to have kids.
When Harrison was born in2013 we thought our lives were complete and our dream would be realised to go on and have a normal everyday life.
But by the time Harrison was 1 though he was definitely not reaching his milestones and through the help of a great GP we were referred to specialists.
After several tests, we got a call while driving to our very first family holiday together. We had been several hours on the road when the phone rang and the Pediatrician told us we may possibly have to turn the car around and go to the children's hospital in Brisbane for further examination. We put on a brave face for the rest of the holiday.
We were referred to a neurologist in Brisbane and told that a blood test had confirmed that our little boy was shown to have Duchenne Muscular Dystrophy. I didn't know what this meant.
This is now known to me as a fatal form of Muscular Dystrophy. 1 in 3500 boys get his and rarely girls. I was told that Harrison would most likely indeed learn to do all these things he was delayed in doing, sitting and crawling, but then, around the time he reaches primary school age his muscle strength will deteriorate. He will, like all the others kids like him, have to resort to a wheelchair by around age 7, over time his muscles to breathe, his ability to eat and his greatest muscle, his heart will fail him. On average kids with Duchenne may make it to their 18th birthday.
I have started this fund for him as over time I will need to give up my part-time job to become full-time carer for Harrison and I stress a lot about his and our future. I am doing everything I can think of to prepare for his future and make it as full and as happy as any other kid out there.
Any contribution you care to make to this fund is being set aside for assistance aids, medication and incidental costs directly related to the effects of Duchenne Muscular Dystrophy.
I thank you for your time for just reading this far and even more grateful for any contribution you may be able to spare.
Kindest regards
Linda - Harrison's mum
When Harrison was born in2013 we thought our lives were complete and our dream would be realised to go on and have a normal everyday life.
But by the time Harrison was 1 though he was definitely not reaching his milestones and through the help of a great GP we were referred to specialists.
After several tests, we got a call while driving to our very first family holiday together. We had been several hours on the road when the phone rang and the Pediatrician told us we may possibly have to turn the car around and go to the children's hospital in Brisbane for further examination. We put on a brave face for the rest of the holiday.
We were referred to a neurologist in Brisbane and told that a blood test had confirmed that our little boy was shown to have Duchenne Muscular Dystrophy. I didn't know what this meant.
This is now known to me as a fatal form of Muscular Dystrophy. 1 in 3500 boys get his and rarely girls. I was told that Harrison would most likely indeed learn to do all these things he was delayed in doing, sitting and crawling, but then, around the time he reaches primary school age his muscle strength will deteriorate. He will, like all the others kids like him, have to resort to a wheelchair by around age 7, over time his muscles to breathe, his ability to eat and his greatest muscle, his heart will fail him. On average kids with Duchenne may make it to their 18th birthday.
I have started this fund for him as over time I will need to give up my part-time job to become full-time carer for Harrison and I stress a lot about his and our future. I am doing everything I can think of to prepare for his future and make it as full and as happy as any other kid out there.
Any contribution you care to make to this fund is being set aside for assistance aids, medication and incidental costs directly related to the effects of Duchenne Muscular Dystrophy.
I thank you for your time for just reading this far and even more grateful for any contribution you may be able to spare.
Kindest regards
Linda - Harrison's mum
Organizer
Linda Williams
Organizer
Helensvale QLD
