Help us find out what is wrong with Lucas

Lucas has been in and out of hospitals too many times to count in his 4 years of life.   What first started as severe acid reflux and failure to thrive, progressed to liver issues, allergies and skin problems.  We have been to the Shands at the University of Florida, Joe DiMaggio Hospital in Miami, Arnold Palmer Hospital, Florida Hospital, National Jewish Health in Denver, and we make numerous trips to Nemours in Orlando each month.  At this point, no one has been able to find a concrete answer.  We keep going down a checklist...finding one problem, and moving along to find the next.    The only things we know for sure are that he he is immunocompromised, (T cell counts are low, some of his vaccinations do not show up), his eczema issues have caused him to become infected with MRSA and Malassezia, and he is on constant antiobiotics (topically at this point).   Steroids were used so much his first year of life, and has caused breathing/asthma to become an issues now, as well as dental problems and some issues with growth/development. He has recently been diagnosed with Eosinophilic Esophagitus, which is a disease that affects the gastrointestinal tract.  The body thinks food is a parasite, and the the white blood cells attack the lining causing vomiting, lack of growth, and what is nearing for Lucas, the possiblity of a feeding tube. 

From all of these medical issues, we are still paying off bills from 2010, 2012, and 2013 (as well as the beginning of this year, which already maxed us out).  

Our biggest fear is taking too long to figure this out, and any delay in diagnosis and treatment could possible cause further complications.

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  • Anonymous 
    • $30 
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  • Janine Cannizzaro 
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Irene Alberici Grissom 
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