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Frontan Angeleri Triplets funds

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After years of infertility treatments, on October 2016 we finally received the miraculous news we were waiting for so long… we were about to become a family.....we were expecting three babies!

 
On January 2017 (13 weeks pregnant) we had the Nuchal Translucency Ultrasound, and we were expecting two boys and one girl (Thiago, Santino & Olivia). But we were told that Olivia had chromosomal abnormalities (trisomy 21).

We were hospitalized for a few weeks off and on due to complications with the pregnancy and an risk of pre-term delivery. On June 7th at 12:58pm, 01:00pm, and 01:02 pm, when I was 32 weeks pregnant, our lives changed forever. The triplets were finally here. We were so happy to announce that god has blessed us with three beautiful babies to love and take care of for the rest of our lives. 

Yet ever since the babies made their debut earlier than expected, it has been a rollercoaster of ups and downs.

 

Since we left the NICU, Olivia has been hospitalized several times for several days due to her condition. Down Syndrome cause nutritional diseases, respiratory issues and feeding/ swallowing problems. Therefore, Olivia uses Oxygen, Sats machine, feeding-help machines, and suctioning machines to clear tubes.

She needs 24 hours care which includes a whole bunch of professionals including nurses (12 hours a day) , dietitians, physiotherapists and speak and language therapists who also help with consumption of food.



On the other hand our beautiful son Thiago who is bright, funny, full of life and a big fighter started showing signs that concerned us right away.. his abdominal area began to get distended, firm and tender. We ordered an ultrasound and MRI and he was diagnosed with kidney cancer stage 1 at the age of 1. On August 24th this year, he had a surgery to remove his right kidney. They determined that if it is a malign tumor, we need to do a biopsy to determine how aggressive it is.  Today (09/07/2018) they determined is an aggressive cancer, chemotherapy treatment for 25 weeks and 15 radiation sessions. (we ll start next wednesday 09/12/2018)



September. 13:
Surgery of catheter placement, (7am) ​​extremely nervous ...... Post surgical with an incident: fall in the hospital crib .... first session of chemotherapy .... for him many punctures and new things for us... It was terrible, I felt very sad because my baby is going through many painful things; We returned home at 4pm, he vomited the whole night and so for three consecutive days.



September. 20:
Second session of chemotherapy ... returns home 12:30 pm and at 1:00 p.m. we had to go to the hospital because its temperature was 39.5 degrees Celsius .... one of the consequences of the treatment is to have temperature over 37.8 ... we were hospitalized 6 days with persistent fever and negative cultures, normal blood tests, without diagnosis. It was chaotic between the hospital and 2 babies at home, dad could not work, all of us very exhausted ..... On Wednesday September 26 we left the hospital with no fever and with a diagnosis: herpangina ....


September. 28:
Third session of chemotherapy ..... he tolerated it quite well only with nausea and fatigue due of the same therapy.


Friday the 28th we had an appointment with the radiotherapist, the radiotherapy sessions will be extended, from 10 sessions it would become 24 sessions. Next Wednesday, October 3, they will perform a sedation tomography to mark the radio area so we can start as soon as possible.

On the other hand.. it has been 2 days Olivia of having very low saturation, depending on oxygen, with cough, with many snot ..., begging not to have to hospitalize her.......

October 5:
Forth session of chemotherapy .......
Olivia is in the hospital again......since September 30 th......



I am trying to digest all this ......... sometimes I feel strong but many more I feel fragile ...... questioning beliefs, etc.
I find it hard to talk, it's hard for me to express myself.
I feel the responsibility to stay strong for the three babies, strong for the family.
Thanks to everyone and I will continue to update as the sessions go by.


 December 07, 2018

We done with the radiotherapy, after 25 radiotherapy sessions!!!

This past week wat terrible. Thiago had to have another surgery last Thursday (11/29/2018) because the catheter was turned and loose. Again we had to go through the nerves and anguish of a surgery. That same day he received the chemotherapy #12. (They changed the drug this time for a stronger one). He came back home feeling very sick, with nauseas, vomiting, diarrhea, sleepy and with a lot of discomfort. Today on Friday 12/07/2018 he is receiving his chemotherapy number 13. 

Olivia was hospitalized again from 11/12 to 11/18 ... pneumonia again. We continue with oxygen therapy, feeding through a nasogastric tube, and working a lot on swallowing.



Hi girls! this is an update of my babies

We done with the radiotherapy, after 25 radiotherapy sessions!!!




This past week wat terrible. Thiago had to have another surgery last Thursday (11/29/2018) because the catheter was turned and loose. Again we had to go through the nerves and anguish of a surgery. That same day he received the chemotherapy #12. (They changed the drug this time for a stronger one). He came back home feeling very sick, with nauseas, vomiting, diarrhea, sleepy and with a lot of discomfort. Today on Friday 12/07/2018 he is receiving his chemotherapy number 13. 

Olivia was hospitalized again from 11/12 to 11/18 ... pneumonia again. We continue with oxygen therapy, feeding through a nasogastric tube, and working a lot on swallowing.







We keep thinking that we are already halfway through the treatment. Seeing the glass full. The holidays are approaching, Christmas, New Year ..... and we try to make balance and find the way to see everything with more

Being a triplet mom is not easy ....... but it's beautiful. I believe that everything can be done with love.

Hugs to everyone.



We also need to do a Genetic study for the diagnosis of hereditary diseases for the 3 of them and it is extremely expensive but necessary for us (more than US$ 5,000 each baby).

 

We were hoping to raise funds to help us with the ongoing care of our gorgeous daughter Olivia and Thiago’s unexpected diagnosis and treatment.

Your help would minimize the financial burden we are facing due to hospital bills, daily appointments and tests and also the need of special equipment for Oli. Please help us get through this difficult time and to afford the care that our babies need at this moment. 

Thank you for all Support... every penny donated will be extremely appreciated.





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Después de años de tratamientos de fertilidad, en octubre de 2016 finalmente recibimos la noticia del tan esperado "milagro", estábamos a punto de convertirnos en una familia ... esperábamos tres bebés.
En enero de 2017 (13 semanas de embarazo) teníamos el Ultrasonido de Translucencia Nucal,  dos niños y una niña (Thiago, Santino y Olivia). Nos confirmaron que  Olivia tenía anomalías cromosómicas (trisomía 21).
Fuimos hospitalizados durante  semanas debido a complicaciones con el embarazo con riesgo de parto prematuro. El 7 de junio a las 12:58, 01:00 y 01:02 pm, con 32 semanas de embarazo, nuestras vidas cambiaron para siempre. Los trillizos finalmente estaban aquí. Dios nos ha bendecido con tres bellos bebés para amar y cuidar por el resto de nuestras vidas.
Desde que los bebés hicieron su debut antes de lo esperado, ha sido una montaña rusa de altibajos.

Desde que salimos de  NEO, Olivia ha sido hospitalizada varias veces durante varios días debido a su condición. El síndrome de Down causa enfermedades nutricionales, problemas respiratorios y problemas de alimentación / deglución. Olivia usa una  máquina de oxígeno, saturometros, máquina de alimentación.
Ella necesita atención las 24 horas,  tenemos un  grupo completo de profesionales que incluyen enfermeras (12 horas al día), dietistas, fisioterapeutas y terapeutas del habla y lenguaje que también ayudan con el consumo de alimentos.

Por otro lado, nuestro hermoso hijo Thiago, que es brillante, divertido, lleno de vida, y un gran luchador comenzó a mostrar signos que nos preocuparon de inmediato ... su área abdominal comenzó a distenderse, firme y sensible. Pedimos un ultrasonido y una resonancia magnética y le diagnosticaron cáncer de riñón en la etapa 1 a la edad de 1. El 24 de agosto de este año se sometió a una cirugía para extirpar el riñón derecho. Se trata de un tumor maligno  llamado Tumor de Wilms y para saber qué tan agresivo es, debemos esperar la finalizacion de la biopsia.

Hoy (07/09/2018) los resultados de la biopsia arrojaron que es un cancer un poco agresivo y realizaremos 25 semanas de quimioterapia y 15 sesiones de radiacion  comenzando el proximo miercoles 12/09/2018)


Septimebre. 13:
Cirugía de colocación de catéter, (7am) muchos nervios......Post quirúrgico con un incidente: caída en la cuna del hospital....primera sesión de quimioterapia....para él muchos pinchazos y cosas nuevas para nosotros fue terrible, me sentí muy triste porque mi bebé está pasando por cosas muy dolorosas; regresamos a casa a las 4pm, esa noche estuvo  con vomitos y así por tres días cosecutivos. 

Septiembre. 20:
Segunda sesión de quimioterapia...regresa a casa 12:30pm y a las 1:00pm tuvimos que salir al hospital corriendo porque su temperatura era de 39.5 grados Centígrados....una de las alarmas del tratamiento es tener temperatura más de 37.8 .....al hospital......estuvimos internados 6 días con fiebre persistente con cultivos negativos hemogramas normales, sin tener diagnóstico. fue caótico entre el hospital y 2 bebés en casa, papá sin poder trabajar, muy agotados todos.....el miércoles 26 de septiembre nos fuimos del hospital ya sin fiebre y con un diagnóstico: herpangina....

Septiembre. 28:
Tercera sesión de quimioterapia.....la tolero bastante bien solo con náuseas y cansancio productos de la misma terapia.

El viernes 28 tuvimos una cita con el radioterapeuta, se van a extender las sesiones de radioterapia, de 10 sesiones pasarían a ser 24 sesiones. El miércoles 3 de octubre le realizaron una tomografía con sedación para hacer la marcación de la radio podríamos comenzar en los proximos dias.

Olivia hace dos días que está con muy baja saturación, dependiendo de oxígeno, con tos, con muchos mocos...,rogando no tener que hospitalizarla.....

Octubre 5:
Cuarta sesion de quimioterapia para Thiago ....... veremos como lo resuelve....
Olivia esta internada en el  hospital......desde el  30 de septiembre.....


Estoy tratando de digerir todo esto.........a veces me siento fuerte pero muchas más me siento frágil......cuestionándome creencias, etc.
Me cuesta hablar me cuesta expresarme.
Siento la responsabilidad de mantenerme fuerte por los tres bebes, fuerte por la familia.
Gracias a todos y seguiré poniendo updates a medida que pasen las sesiones.

7 de diciembre

Esta semana qué pasó fue terrible. A Thiago lo tuvieron que volver a operar el jueves pasado (11/29/2018) porque se le había girado el catéter y estaba suelto. Otra vez pasar por los nervios y angustia de la cirugía. Ese mismo día  le pasaron la quimioterapia número 12. (Le cambiaron la droga) Volvió muy descompuesto, náuseas, vomitos, diarrea, mucho sueño y malestar. Estuvo así hasta hace dos días y hoy viernes 12/07/2018 recibe su quimioterapia número 13. Por un lado pensando que ya estamos a mitad del tratamiento. Viendo el vaso lleno. Se aproximan las fiestas, Navidad, Año Nuevo.....y uno trata de hacer balances y buscar la forma de ver todo con más positivismo .....

Olivia estuvo internada nuevamente del 11/12 al 11/18.....neumonía nuevamente. Seguimos con oxigenoterapia, alimentación por sonda nasogastrica, y trabajando mucho en la deglución.




Ser mama de trillizos no es fácil.......pero es hermoso. Creo que con amor todo se puede.

Besos!


Necesitamos hacer un estudio genético para el diagnóstico de enfermedades hereditarias para los 3 bebes y es extremadamente costoso pero necesario para nosotros (más de US$ 5,000 cada bebé).

Esperamos recaudar fondos para ayudarnos con el cuidado continuo de nuestra  hija Olivia y nuestro hijo Thiago .
Su ayuda minimizaría la carga financiera que enfrentamos.
Ayúdenos a superar este momento difícil y pagar la atención que nuestros bebés necesitan en este momento.
Gracias por todo el apoyo ... cada centavo donado será extremadamente apreciado.

Organizer and beneficiary

Andrea Angeleri
Organizer
Miami, FL
Nicolás Frontan
Beneficiary

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