My name is Freya I am 5 years old and have severe cerebal palsy accompanied by epilepsy, chronic respiratory problems, I require oxygen therapy, I am blind, I have my food, water & my medicines through a little button in my tummy. I have severe sciliosis and I'm immobile.
I also need specialist equipment which includes a concentrated oxygen machine, standing frame, functional chair and sleep system. At present, I don't have a bedroom of my own I currently sleep in the dining area of my family home. This room has limited space for my nurses and family to care for me with no room to install a hoist to help me to be lifted safely. I cannot access the upstairs of my home to use the bath for enjoyment therapy, hygiene and to alleviate pain when I'm experiencing frequent muscles spasms.
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