Ehlers Danlos Syndrome
Donation protected
Vibrant and fun loving Fiona was always the life of the party. Until one day her body gave up on her. For over 4 years she has lived in pain and exhaustion due to fighting the pain. Sleep does nothing to ease the pain, she has good days but it's only a short time before she deals with headaches, join pain and no energy. EHLERS DANLOS SYNDROME is one of the silent diseases, rare without funding or real understanding by the medical world. Suffers deal with levels of discomfot to total debilitating bed ridden pain.
There is a light at the end of the tunnel and it will take about $5,000+ for Fiona to be pain free, not cured but pain free and it is possible, according to the clinic in Chicago, that she will be able to live the rest of her life as normal as possible and not having to spend weeks in bed. We are in California and she needs to travel to Chicago for treatment. Insurance does not cover the treatment and the longer we wait the more she lives in pain. We are asking for donations to help her pay for treatment and for a new life!
Thank you
Gene
Fiona's Dad.
There is a light at the end of the tunnel and it will take about $5,000+ for Fiona to be pain free, not cured but pain free and it is possible, according to the clinic in Chicago, that she will be able to live the rest of her life as normal as possible and not having to spend weeks in bed. We are in California and she needs to travel to Chicago for treatment. Insurance does not cover the treatment and the longer we wait the more she lives in pain. We are asking for donations to help her pay for treatment and for a new life!
Thank you
Gene
Fiona's Dad.
Organizer
Eugene Byrne
Organizer
Oxnard, CA
