Our little girl, Ella Faith, was diagnosed with Tetralogy of Fallot before she was even born. She had a hole in heart between the 2 ventricles and a small pulmonary valve.
Right now, we are without our precious one and it hurts to not be complete. We know that we will have her home soon but it's so hard to be patient.
We are so thankful for such a strong group of people praying for Ella every day and checking on us for progress. However, the medical bills are already pouring in, the cost of gas/parking/meals on the go are starting to add up quickly. While we know the bills will continue to come, it just makes it harder to deal with as we are an incomplete family at this time. Any financial help you can provide would be very appreciated during this stressful chapter of our lives.
A little history of Ella and our journey:
When she was born at the Children's Hospital of Philadelphia on March 8, at 4lbs 3 oz, she was immediately moved to the Cardiac Intensive Care Unit. I didn't even get to hold her until the following day which was difficult emotionally and physically because of all the wires that were connected to her.
We spent the next 9 days back and forth to CHOP in order to visit our baby girl daily.
Finally, on March 17th, she was discharged and we got to bring her home. We couldn't believe it! It was the slowest drive home we've ever endured. She did great and slept the whole way home. For the next 2 weeks, we were enjoying being a family, helping her grow, and loving her to pieces even with her diagnosis.
On Friday, March 31, we went back to CHOP to check on her progress. What I thought was going to be a routine Echocardiagram and EKG, turned into a readmittance to the hospital. We were not emotionally prepared for yet another stay. It felt like such a tease to have her home for only that 2 weeks to be without her again for who knows how long. The cardiologists felt that her oxygen levels were too low and the discussion of her repair surgery was brought to light much sooner than they anticipated.
On Monday, April 3, she received open heart surgery by cardiologist Dr. Spray, and he performed the full repair instead of just a temporary fix. We were elated he was able to do so and thus began the long road to recovery.
Unfortunately, we have yet to be able to bring her back home and no idea when that will be. We continue to visit her every day, despite the one hour commute from our house to the hospital, in anticipation of returning her to our arms.
I know you've asked how you can help, and at this moment, this would be the best way. Thank you again for your support, prayers, and thoughts. We truly feel loved and cannot wait to introduce our adorable baby to the world.
If you want to learn more about Tetralogy of Fallot, please click HERE