DylansTrust - Dylans Extension
Donation protected
Climbing High for Dylan
Simon Edwards and Graham Davis - Ben Macqui
Simon and Graham are embarking in a 3 day 2 night Expedition to Scotlands Cairngorm National Park mountain range, will consist of 57km hike. Simon says "We will be climbing the UK second highest mountain Ben Macdui unlike Ben Nevis Ben Macdui is situated in the centre of a vast wilderness This route is a remote hike that leads up to an exposed arctic like plateau which experiences savage weather conditions we hope to climb a further 4 mountain peaks Cairn Lochan, Stob Corie an t- Sneachda, Cairn Gorm, and The Saddle. They are planning to cover an average of 18km per day and we will be ascending altitude of 1309m at the highest point. This is one of the most remote parts of the UK we will be sleeping on the mountain range for 2 nights and have to be self sufficient for the entirety of our expedition carrying all our own equipment."
Massive Thanks to Both Simon and Graham
Good Luck with the Expedition
___________________________________________
Welcome to Dylans Trust
Local Openreach Engineers and Managers come together as a Community
The Openreach Calendar
Just a quick note to advise the Openreach Staffordshire & Shropshire Community Calendar is now on sale!! It has been a fantastic effort by all involved including the models, photographer, and those who rallied round on the day of the shoot making tea and bacon butties for all. Designed by Westhill,of London, and printed by Xerox.
The final result is great quality and epitomises what Openreach Communities is all about!!
Sincere thanks to all involved. If you want a copy they will be on sale at £5 each and 100% goes to Dylans Trust a fantastic and worthy cause. If you would like some copies to sell on behalf of the charity or buy one please let me know.
(Warren 07950 413121)
CHILD OF COURAGE 2012 - WINNER
OUR MAIN INFORMATION SITE IS BEING UPGRADED AT THE MINUTE, (still) but you can access the current version by going to www.DylansTrust.org.uk
.
Great Ormond Street - Silverstone F1 - Lucky Dylan !!
Dylans Trust has been set up for our Wonderful Son, Dylan
Dylan was diagnosed with a Congenital Muscular Dystrophy, in October 2005. The CMD that Dylan has is Ullrich Congenital Muscular Dystrophy. This is a disabling, progressive and life limiting disease for which there is no known cure, yet.
With the help of this website and through fundraising efforts, we aim to increase awareness of Dylans condition, and raise money in an effort to provide him with the best quality of life that he can have. We are in the process of trying to raise £32,000, so that we can extend our house to incorporate a bedroom, "wetroom" and wheelchair lift for Dylan. There is a lot of essential specialist equipment that for both in and out of the home, that will help Dylan. Our intention then is to continue raising both funds and awareness that will benefit the research into his condition.
We are arranging a few fundraising events, in the near future, but we still have a way to go. So, if you would like to take part in any of our fundraising events, organise your own event, sponsor an event, or simply donate to Dylans cause, we would greatly appreciate your help and support
Keep abreast of how things are shaping by logging onto Dylans website
The money collected will go towards making Dylans quality life as good as possible, by building him the Extension. Giving him the space and comfort that he needs. Keeping Him within the Family unit..
Supporters can also help by... Donating
Time Materials Tools
Knowledge Expertise
Money
Thank you so much for taking the time to visit our site, we hope you return soon.
Dylan, Shel and Warren
Call Us if you can Help in anyway,
07950 41 31 21
Simon Edwards and Graham Davis - Ben Macqui
Simon and Graham are embarking in a 3 day 2 night Expedition to Scotlands Cairngorm National Park mountain range, will consist of 57km hike. Simon says "We will be climbing the UK second highest mountain Ben Macdui unlike Ben Nevis Ben Macdui is situated in the centre of a vast wilderness This route is a remote hike that leads up to an exposed arctic like plateau which experiences savage weather conditions we hope to climb a further 4 mountain peaks Cairn Lochan, Stob Corie an t- Sneachda, Cairn Gorm, and The Saddle. They are planning to cover an average of 18km per day and we will be ascending altitude of 1309m at the highest point. This is one of the most remote parts of the UK we will be sleeping on the mountain range for 2 nights and have to be self sufficient for the entirety of our expedition carrying all our own equipment."
Massive Thanks to Both Simon and Graham
Good Luck with the Expedition
___________________________________________
Local Openreach Engineers and Managers come together as a Community
The Openreach Calendar
Just a quick note to advise the Openreach Staffordshire & Shropshire Community Calendar is now on sale!! It has been a fantastic effort by all involved including the models, photographer, and those who rallied round on the day of the shoot making tea and bacon butties for all. Designed by Westhill,of London, and printed by Xerox.
The final result is great quality and epitomises what Openreach Communities is all about!!
Sincere thanks to all involved. If you want a copy they will be on sale at £5 each and 100% goes to Dylans Trust a fantastic and worthy cause. If you would like some copies to sell on behalf of the charity or buy one please let me know.
(Warren 07950 413121)
CHILD OF COURAGE 2012 - WINNER
OUR MAIN INFORMATION SITE IS BEING UPGRADED AT THE MINUTE, (still) but you can access the current version by going to www.DylansTrust.org.uk
.
Great Ormond Street - Silverstone F1 - Lucky Dylan !!
Dylans Trust has been set up for our Wonderful Son, Dylan
Dylan was diagnosed with a Congenital Muscular Dystrophy, in October 2005. The CMD that Dylan has is Ullrich Congenital Muscular Dystrophy. This is a disabling, progressive and life limiting disease for which there is no known cure, yet.
With the help of this website and through fundraising efforts, we aim to increase awareness of Dylans condition, and raise money in an effort to provide him with the best quality of life that he can have. We are in the process of trying to raise £32,000, so that we can extend our house to incorporate a bedroom, "wetroom" and wheelchair lift for Dylan. There is a lot of essential specialist equipment that for both in and out of the home, that will help Dylan. Our intention then is to continue raising both funds and awareness that will benefit the research into his condition.
We are arranging a few fundraising events, in the near future, but we still have a way to go. So, if you would like to take part in any of our fundraising events, organise your own event, sponsor an event, or simply donate to Dylans cause, we would greatly appreciate your help and support
Keep abreast of how things are shaping by logging onto Dylans website
The money collected will go towards making Dylans quality life as good as possible, by building him the Extension. Giving him the space and comfort that he needs. Keeping Him within the Family unit..
Supporters can also help by... Donating
Time Materials Tools
Knowledge Expertise
Money
Thank you so much for taking the time to visit our site, we hope you return soon.
Dylan, Shel and Warren
Call Us if you can Help in anyway,
07950 41 31 21
Organizer
Warren Kelsall
Organizer
