Batten Disease is a rare, termianl disease that has no cure, no treatment, and is always fatal. It affects children and adults alike and causes a severe regression of all abilities. It leaves the affected bed ridden, using a feeding tube, with uncontrollable movements and seizures, takes away vision, and requires high doses of medication just for comfort. Children do not survive past childhood. This disease tries to steal our hope but we hold on, praying and dreaming of the day when a cure is found. By donating to Batten Disease Research, you help strengthen our chances of curing those affected by this terrible disease, raise awareness, and save lives. Thank you for your donation and thank you for giving us hope.
- Diane Costa
- Amy Caldwell
- Stephanie Fulcher
- Mary Lou E Mateja
- Elizabeth Polome
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION
Donations are 100% tax deductible.