Connor Shipp

On September 7th 2019 we were informed that  Connor has a very rare genetic disease called Adrenoleukodystrophy or ALD; the Childhood-Onset of ALD impacts boys between the ages of 4 and 10. Because it is so rare it is not screened for at birth. The strain that has hit Connor has no cure and will lead to his passing.

What is a Leukodystrophy?
Leukodystrophies are a group of disorders that cause deterioration of the white matter, or myelin, in the brain. The term Leukodystrophy is derived from the prefix leuko, meaning white, and the word dystrophy, meaning imperfect growth. Therefore, Leukodystrophies are characterized by imperfect growth of the white matter in the brain. White matter, also known as myelin, makes up the insulating sheath surrounding the nervous system. This protective covering acts much like the coating around electrical wire in that it is responsible for the rapid transmission of signals to and from the brain to neurons throughout the body. Without white matter (myelin), communication between the brain and nervous system becomes disrupted or nonexistent, thus resulting in a Leukodystrophy.

Thank you for helping our son at this time. ALL of these funds will go to ensure Connor has a great quality of life with the time that he has remaining. It is because of great people like you that we are blessed as a family.

Donations ()

  • Todd Capdeville 
    • $250 
    • 8 d
  • Georgia Vanderville  
    • $40 
    • 22 d
  • Nathalie Porter 
    • $10 
    • 26 d
  • Tiffany Marrone 
    • $100 
    • 1 mo
  • David Karbassi 
    • $25 
    • 1 mo
See all

Fundraising team: Team Shipp (7)

Tyler Thornton 
Organizer
Raised $206 from 2 donations
Reno, NV
Jason Shipp 
Beneficiary
Damon Keele 
Team member
Raised $1,000 from 6 donations
Rita Hemmert 
Team member
Raised $415 from 5 donations
McKaylee Dreher Thornton 
Team member
Raised $150 from 1 donation
Tracy Hemmert 
Team member
This team raised $22,515 from 206 other donations.
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