Let me also say, before I get to the list of ailments, that if you can't donate, then please pass my information along to someone else who might be able to. These sort of campaigns are wedded to a great word of mouth system.
I've shortened my initial description but thinks I've hit the major points. So, let’s start with the current diagnosis:
Condition: Parkinson's Disease (PD)
Condition: Parkinson Dementia (accompanies PD).
Condition: Restless leg syndrome
Condition: Carpal tunnel syndrome, bilateral
Condition: Rheumatoid arthritis
Condition: Disc disease, lumbar
Condition: Stenosis, lumbar spine
Condition: Low back pain, chronic
Condition: Edema leg
Condition: Chronic pain
Condition: Anxiety depression
I've had two surgeries in the last two months. I'm schedule next week for surgery for the Lumbar Stenosis. They expect probably two surgeries actually needed.
Insurance doesn't cover work with the NeuroPsychologist, which an important part of how to deal with depression for a disease/disorder set like this.
To put this into perspective, two very well known people have suffered from some or all of the same things I have. Mohamed Ali has Parkinsons, and you see it in easily in the "stone face" expressions (loss of control of those muscles). He also has a very pronounced shuffle when he walks.
Michael J. Fox is probably the biggest advocate for Parkinsons. If you get a chance watch the video at youtube when he is interviewed about his disease.
Lastly, I share a number of issues with Robin Williams. One of the greatest comedy minds of our life, who chose an early out rather than face the pain of watching himself degenerate right before everyone's eyes.
We share the Parkinsons' but also, my neurologist suggest, I also share the Parkinson's dementia. So far, both are controlled by medicine, which by itself is very expensive.
On July 1 we will drop back to all new deductables on the insurance. Where I get hit is with some of the medications for Parkinson's and the related disorders such as Parkinson's Dementia. I'll have a lot of co-pays for the seven doctors I currently see, and of course there will expenses with the fourth surgery which should occur in September.
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