I have always had physical struggles. I was born with a hereditary joint disorder called spondeloepiphiseal dysplasia tarda. I have always had pain and physical limitations, but I have always been able to,through strength of will, persevere to participate in activities when I wanted to. I had the choice of accepting the pain and dealing with the consequences of my actions for anything I was enthusiastic about or passionate about. I traveled to Australia, Bulgaria and Greece while in college,and took yearly trips with my brother for several years because I loved gaining those experiences.
However, since having my back surgery in October 2016, I have lost more and more strength and independence as time goes on.I also have MS, which further exacerbates the weakness and fatigue I experience on a daily basis.
For the past 3 months,I have experienced rapid deterioration in my condition. I can't get anywhere or do anything out of my house without a lot of help,with the car I have now. I have missed a lot of work,and I've missed out on a lot of socializing...I just am unable to participate in life as-is.
I no longer have the choice of accepting the pain and doing something I enjoy. My body no longer allows me to make those choices. I am just weak and my muscles do not respond to conscious attempts to move them. I have muscle spasms and involuntary twitching,but just can't get my right side to do what I want it to. This is one of the most frustrating experiences in my life...losing control...I've always been independent and self-motivated,but i'm having to accept new limitations and ask for more help. This has taken its toll on my self-esteem and self-worth.
While I may never be able to travel abroad again, a wheelchair accessible van will give some choice, independence, and local travel opportunities back to me. If i have a vehicle I can use without exhausting myself, I can once again so things on a whim...my life,or part of it,can resume with some tiny bit of normality.
Unfortunately, health insurance will pay nothing on a van. So I need some help...I got a few quotes,and for what I need, vans are quite a bit more expensive than I thought. So please consider helping by sharing my campaign as widely as possible
In accordance with 5 CFR 2635.302, I am NOT specifically soliciting a contribution from any other federal employee for a gift to either my own or other employee's official superior. I cannot accept a gift from any employee that is my direct official subordinate. This fundraiser is in no way associated with my official federal employee position, and I can NOT accept any gift given if it was given BECAUSE of my official position.
Further, I cannot accept gifts of monetary value from defense contractors. Although this campaign has nothing to do with my position, due to potential appearance of impartiality, I must not accept gifts from these prohibited sources.
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- Daniel Musser
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