My body does not protect me, but instead fights against me. Every year I only get worse. I have been on the search for doctors who can figure out what exactly is creating my body to fight every harmless thing out in the world. I used to be able to run and play outside or go on a bike ride. Now I am afraid that I will stop breathing if I smell a bonfire or touch a piece of tape. I can safely eat only a handful of foods, wear organic clothes, and be around certain furniture, products, and people. Not only do I live in a "bubble" but my health is going down hill fast. I barley made it though high school and had to forget my plans to go to college.
My life is simply survival. I do NAET allergy elimination treatments which is an alternative treatment that has allowed me to eat more then one food and take off my mask and gloves inside my own house (but now my body is even too weak to continue with this). I need chiropractic care, acupuncture, biological dentist, selective supplements, and specialty doctors to keep me from getting any sicker. Extensive genetic, stool, toxicity testing is needed to monitor that my body is able to function.
As you can imagine, this all adds up, and is now putting a strain on my family's financial resources. Each test is a $200-400 each. The new doctors who can help me are $300-400 each visit (and I will need several visits). Plane flights back and forth are at least $200 a ticket. Supplements and therapies to heal my body are going to add up quickly. Insurance will not cover these costs because the doctors are not recognized under their system, even though they are just as qualified as the doctors who are. Traditional Medicine has only failed in helping me because they are trained to give medicine. I am allergic to all medications and my liver does not detoxify medicine, instead it poisons me.
I don't want to give up yet. I believe there are answers out there for me, but I need the resources to travel and go to specialty doctors. I research and ask questions to find ANYONE who is willing and capable of helping me. The doctors who can help me are alternative doctors who think outside the box. Currently I am looking at doctors out of my home state which is very risky for me and expensive (plane flights, safe transportation, the doctors visit, therapies). I am using up all my college funds and living off my parents resources. I cannot have a job due to my severe allergies to the world.
My health journey gets more complicated and crippling by the day. Each month goes by and my body (specifically kidneys and liver) is starting to show signs of extreme distress. I dont want to give up yet and give into my failing body. I have dreams of helping people like myself someday but need resources to go find answers for myself first.
After 19 year of doctors saying they can't help me, I still have not lost hope. I know I can get well from this rare illness and live to not only tell my story but to help people who are "mystery cases" like myself. Mysteries take time, money, resources, prayer, and determination to uncover. I am willing to take every risk possible, but financially I need help to find answers and get help. I don't have all the time in the world left before my body starts to fight against itself even more. My prayer every day is to get well so I can give back to people who are helping me.
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