As many of you have heard Baby Zion is currently in the process of being diagnosed with SMA.
Spinal muscular atrophy (SMA) is a genetic condition that causes muscle weakness and atrophy (when muscles get smaller).
SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Severe SMA can damage the muscles used for breathing and swallowing.
Fortunately there is hope. In December 2016, a new drug, named Spiranza, became the first approved drug used in treating this disorder.
Sadly, the drug is extremely expensive. One dose of the treatment costs $125,000 and Zion may need as many as 6 doses.
This fund is created in order to help the Lattore family during this difficult time
- Alison Otwell
- luke vasicek
- Haddon Anderson
Organizer and beneficiary
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