Support for Baby Jerermy
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Jeremy was born 100 days early due to severe preeclampsia. He has been in the hospital his entire life. He has been diagnosed with severe BPD (or chronic lung disease) due to extreme prematurity. At two months old, he had a trach put in. We have been told by the doctors that it looks like his lungs are getting worse, not better, but he still has time to grow new, heatlhy lung tissue, so we are not giving up hope.
The long term nature of his hospitalization (and the related medical bills) and the severity of my illness prior to and immediately after delivery have left our family in a bit of a financial bind. We are hoping there are some kind hearted people out there who want to and are able to help us out in this time of need. If not for Jeremy, I wouldn't even be setting up this page, but he is everything and I would do anything for him.
For those interested, and don't want to scroll through my updates, here is his birth story:
On June 19, 2013 I was surprised to discover that I was pregnant with our first child. James was over the moon. In fact, we knew we wanted this baby, so we were both very happy. We agreed to get married before the baby arrived.
Early screening told us we had an increased risk for having a baby with Downs Syndrome, so we decided to agree to an amnio when we had the anatomy scan. Before going to the doctor, we went to City Hall for our marriage certificate. At the anatomy scan we were blessed with the news that we were expecting a little boy. A call from the geneticist the next day not only confirmed this, but also said we were in the clear for Downs. With this news we finally posted the good news to Facebook (we had already let family know back in July).
In late October, I went for my monthly prenatal appointment, and my blood pressure was 170/120. My doctor sent to the hospital right away for observation. I was hooked up to a BP monitoring machine, given an IV and told that they had to figure out what was going on with my blood pressure before sending me home. The only problem is that my husband and I had planned our wedding for the following Friday (Nov 1) and no one could tell us when I was getting out of the hospital. After six days, I was released with a diagnosis of preeclampsia, told I needed to be seen at my doctor's office weekly and given a regiment of drugs to take to control my blood pressure.
James and I got married, as planned, at City Hall on November 1, 2013 surrounded by his family and a few of my closest friends. Afterwards, we had a lovely lunch at a downtown pub. I quickly set about changing my last name.
Not even three weeks later, I went to the hospital for a growth scan and to have my weekly labs taken. While at work that afternoon, my doctor called to tell me I needed to return to the hospital because my numbers were off and they needed to keep an eye on me, possibly until I gave birth. I finished my day, went home, packed a bag, did the dishes and headed back to the hospital. After two days of testing and observation we got the news that I had progressed to severe preeclampsia and I needed to remain in the hospital for the remainder of my pregnancy.
On Friday night, my blood pressure began to rise again. I was brought down to the labor and delivery floor as they were unsure what was going to happen. The next morning, I spoke with one of the doctors who said they were going to do their best to get my numbers back under control and get me back to my room, but by 6:30 that night, the doctor had returned to ask me where my husband was. Luckily, he was already on his way to the hospital as we had plans to watch the Doctor Who 50th Anniversary special.
According to my husband, the doctors told him that they could maybe buy me 12 hours, but they couldn't guarantee that I would make it through the night without having either seizures or a stroke or both. I was given a Magnesium drip, catheterized and wheeled into the OR. At 9:21 on Nov 23, Jeremy Douglas Kreisel came crying into the world via emergency C-section. He's been fighting ever since.
The long term nature of his hospitalization (and the related medical bills) and the severity of my illness prior to and immediately after delivery have left our family in a bit of a financial bind. We are hoping there are some kind hearted people out there who want to and are able to help us out in this time of need. If not for Jeremy, I wouldn't even be setting up this page, but he is everything and I would do anything for him.
For those interested, and don't want to scroll through my updates, here is his birth story:
On June 19, 2013 I was surprised to discover that I was pregnant with our first child. James was over the moon. In fact, we knew we wanted this baby, so we were both very happy. We agreed to get married before the baby arrived.
Early screening told us we had an increased risk for having a baby with Downs Syndrome, so we decided to agree to an amnio when we had the anatomy scan. Before going to the doctor, we went to City Hall for our marriage certificate. At the anatomy scan we were blessed with the news that we were expecting a little boy. A call from the geneticist the next day not only confirmed this, but also said we were in the clear for Downs. With this news we finally posted the good news to Facebook (we had already let family know back in July).
In late October, I went for my monthly prenatal appointment, and my blood pressure was 170/120. My doctor sent to the hospital right away for observation. I was hooked up to a BP monitoring machine, given an IV and told that they had to figure out what was going on with my blood pressure before sending me home. The only problem is that my husband and I had planned our wedding for the following Friday (Nov 1) and no one could tell us when I was getting out of the hospital. After six days, I was released with a diagnosis of preeclampsia, told I needed to be seen at my doctor's office weekly and given a regiment of drugs to take to control my blood pressure.
James and I got married, as planned, at City Hall on November 1, 2013 surrounded by his family and a few of my closest friends. Afterwards, we had a lovely lunch at a downtown pub. I quickly set about changing my last name.
Not even three weeks later, I went to the hospital for a growth scan and to have my weekly labs taken. While at work that afternoon, my doctor called to tell me I needed to return to the hospital because my numbers were off and they needed to keep an eye on me, possibly until I gave birth. I finished my day, went home, packed a bag, did the dishes and headed back to the hospital. After two days of testing and observation we got the news that I had progressed to severe preeclampsia and I needed to remain in the hospital for the remainder of my pregnancy.
On Friday night, my blood pressure began to rise again. I was brought down to the labor and delivery floor as they were unsure what was going to happen. The next morning, I spoke with one of the doctors who said they were going to do their best to get my numbers back under control and get me back to my room, but by 6:30 that night, the doctor had returned to ask me where my husband was. Luckily, he was already on his way to the hospital as we had plans to watch the Doctor Who 50th Anniversary special.
According to my husband, the doctors told him that they could maybe buy me 12 hours, but they couldn't guarantee that I would make it through the night without having either seizures or a stroke or both. I was given a Magnesium drip, catheterized and wheeled into the OR. At 9:21 on Nov 23, Jeremy Douglas Kreisel came crying into the world via emergency C-section. He's been fighting ever since.
Organizer
Lyssa Kreisel
Organizer
New York, NY
