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Family In Need Of Help!

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Isaiha and Melony: Hey guys! So we're not really big on putting out our personal business, but our family is in desperate need of help. We also want to bring awareness to rare diseases in the hopes of finding a cure for them. It breaks our hearts to even put this into words... Our mother has many autoimmune diseases, which have impaired her life. She is only 48 years old and has 4 autoimmune diseases which are progressively getting worse... They are Sjögren's syndrome, alpha-1 antitrypsin deficiency, wegener's granulomatosis, and scleritis. Because of the many wrong treatments and medications she has received over time, her kidneys are failing and is currently undergoing dialysis 3 times a week which by the way, here in Florida they are not taking it upon themselves to ensure her quality of life, resulting in  emergency visits 2-3 times a week for the past 6 months and they still cannot seem to get it right. Her eyesight is deteriorating and on top of her scleritis she is now diagnosed with cataracts. Her lungs are giving out which now requires her to be on 3 liters of oxygen 24 hours a day which is also being limited by her oxygen company who is only supplying her with 9 tanks for the month lasting only 3 hours per tank. She has had many surgeries because of these diseases, and is not even eligible for a lung or a kidney transplant because going under is a huge risk factor. Currently she has a stoma due to Surgical Malpractice because of a bad case of diverticulitis. She later went into surgery to have her stoma reversed, but ended up getting another stoma because a nurse, post recovery would not assist her to the restroom causing a tear in the sutures resulting in another emergency surgery. These are just some of the issues we have gone through in the past 11 years. It would take a lifetime to write down what we all have gone through during these years. It would mean the world us to see her dance again, walk again, vacation again, or go out without carrying her huge oxygen tank and worry about dialysis. She decided to move to Florida from New York to see if the warmer weather would do her some good but unfortunately the health care in Florida is making things worse and New York isn't any better. She is tired of being so limited and we feel like we hit a brick wall with no way out. My brother @lifeofbenandi has been doing research for years and if it weren't for him, our mother would be much worse or maybe no longer with us. He came across stem cell therapy, which has helped many people with all sorts of conditions. The only problem with this is that it's way out of our price range. She is at the point where she wants to sell her house! Which she worked so hard for. Now we are setting up a go fund me account in hopes to gather at least $40,000. I'm also selling as many thing as I can! Any donations would be greatly appreciated. Feel free to ask me to make you anything you see on my Instagram page @melonys_sewing_spot , all proceeds will go to her treatments and medical expenses!. Our mother has always been there for us no matter what! I hope we can at least get her the help she needs to live a decent life and if we can raise more than this and be able to relieve her from her mortgage and all the debt in her life it would be a great relief for all of us.  Thank you all for taking the time to read this!
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Donations 

  • Lisa Garcia
    • $100 
    • 5 yrs
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Organizer

Isaiha Buggz Mendez
Organizer
Little Neck, NY

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