Ashtons Brain Cancer Journey

UPDATED: I haven’t been able to make an updated post in a while because my mind knows what’s happening but my heart isn’t ready to accept it

We have been soaking in all the moments with the kids the best we can.

All I can say is Cancer Sucks…

Everyday is a struggle for Ashton. The left side of his body he can’t use anymore. He hasn’t been able to walk for months now. He can’t roll over, sit up, lay down, or reposition himself. He is starting to have some swallowing issues and other things we’re noticing.

Watching him decline is so hard. You want to help him and you can’t. To watch him try with everything in him to sit up on his own or to move the left side of his body will break your heart. We are always right there to move him whichever way he wants. Most days it’s sitting up and laying down over and over until he gets comfortable or if he lets me hold him I take full advantage of that. He loves to drive around day and night so that’s exactly what we do.

Yesterday he was trying to move his left arm and he reached over with his right, grabbed it and pulled it so hard while yelling out. He was so frustrated and doesn’t understand what’s happening.

Through the tears, I’m trying to explain to him it is okay and I’m right here with him.

We have to do everything for him now, he does still try to feed himself here and there.

Bath time has become a struggle since he can’t sit up on his own. To pick him up, he is all weight and has gotten very heavy.

He can’t hold up anything but his head and he can barley do that somedays. He just burys it into you as soon as you lift him up.

We try to hold him and walk around as much as possible if he will let us.

He is over all the medicine. He grabs the syringe and try’s to throw it or if he sees me getting his meds lined up he starts saying “mama no, no mama” while holding his little hand up ✋

My response is absolutely Bubby we can wait. Let’s take a break. He will look at me and smile with that sweet grin.

His mind is still with it. He listens to everything and knows what he wants.

And as we all know Ashton gets what he wants and when he wants it! ‍♀️

This is Ashton’s world, we are just living in it

Please keep him in your thoughts and prayers.

He is still fighting but we’re seeing how tired he is. His little body is starting to give up but his mind is not. That’s the worst part. He wants to run and play and do everything a 2 year old should but his body isn’t allowing him

He tried to slide off my lap last week to stand. He wanted to go ride in the jeep jeep. I just slid to the floor with him. I can’t let him realize fully everything he can’t do. It’s heartbreaking.

This is taking a toll on everyone mentally, physically, and emotionally. I’m always telling the kids Ashton doesn’t deserve this and they don’t deserve to see the things they do. I just hope it gives them strength to never stop fighting for Ashton and to be an advocate for these kids.

We always say we will never stop spreading awareness and fighting for our Bubby

#AshtonsArmy

#braincancerawareness

#morethan4

BEGINNING: For those that haven’t heard, Ashton was taken into the ER for what was thought to be a badflu bug going around. There the doctor noticed his head was swollen & ordered a cat scan. They found a mass & fluid on his brain. He was transferred to main campus Cleveland clinic where he was admitted into the ICU. He will be undergoing brain surgery within the next couple days & the doctors have already told Tara and Joe he won’t be going anywhere anytime soon. 

I wanted to set this page up to help with the medical bills they will be experiencing from all of this as well as other bills & expenses since it is unknown how long Joe will have to take off of work. 

we appreciate everyone who is continuing to pray for our sweet Ashton as well as praying for Tara, Joe, Keilee, Austin, & Kendall & those who are ableto donate & help out. Thank you from the bottom of our hearts.