ART for ALD supports AidanHasAPosse.org

PRE DONATIONS ARE CLOSED AT THIS TIME!!!!!!!!!!!!!!! PLEASE FOLLOW the ART for ALD page on Facebook for information as to when this project will be launched publicly!!!!  THANK YOU ALL FOR YOUR CONTRIBUTIONS!!!!!!!!! 

You may recall back in Dec 2011, when I, "Diva Dawn" Santucci, campaigned to raise $5,000 in a few weeks time for AidanHasAPosse.org by jumping into the frigid waters off Coney Island, virtually clothing free, on New Years Day.  I am proud to announce I am again raising money for the AIDAN JACK SEEGER FOUNDATION aka AidanHasAPosse.org through my mini mystery art project I call ART for ALD

The ART for ALD project will be raising a MINIMUM of $10,000 to support the AIDAN JACK SEEGER FOUNDATION aka AidanHasAPosse.org by way of MYSTERY ART painted and donated by various artists around the country.  These artists include world renown Scott Jacobs and Marc LacourcierePat Simmons of the Doobie Bros, country music singer, John Stone, actor Butch Patrick aka Eddie Munster and watch designer to the stars, Steve Soffa, just to name a few.  There are also works by talented emerging artists, as well as select students who are studying the craft. 

HOW THE MONEY WILL BE RAISED: By offering these mini painted works of art, measuring 4" x 4", as a gift, for a minimum donation of $50.00 (plus 6.00 handling fee) to the AIDAN JACK SEEGER FOUNDATION.  The contributor may choose between any of the mini painted canvases  HOWEVER, and here inlies the mystery, the name of the artists will NOT BE REVEALED until the donation is made and after the contributor has selected the piece of art they want. This is why it is called "MYSTERY ART" 

What IS the AIDAN JACK SEEGER FOUNDATION? The Aidan Jack Seeger Foundation was established in 2012 by Elisa and Bobby Seeger, owners of Indian Larry's Motorcycles in Brooklyn, NY, whose 7 year old son, Aidan, died of a rare brain disease called Adrenoleukodystrophy (ALD).  ALD destroys the myelin sheath in the brain and affects all neurological functioning:  the ability to see, hear, move, and eat are taken away leading to a vegitative state and inevitable death.  This disease is a silent one and most kids, when finally diagnosed, are between the ages of 4 and 7 and are already too late for treatment.  However, this rare disease can be treated and EARLY DETECTION is the key.

"AIDAN'S LAW" was enacted in new York State on March 29th, 2013.  The Aidan Jack Seeger Foundation fought tirelessly to get ALD added to the New York State Newboen Screening Panel.  Starting january 1, 2014, every baby born in New York State is now tested for ALD.  In the month of January alone, 4 babies were diagnosed with ALD.  Because of "AIDAN'S LAW" this gives each child the chance for monitoring and treatment before the disease starts and the best chance for a normal healthy life, the chance Aidan never had. 

Thank you for your time and a big heart felt hug to those that donate today. 

Sincerely,

Diva Dawn Santucci
Biker Chick Extraordinaire
[email redacted] 

For more information on the AIDAN JACK SEEGER FOUNDATION please go to aidanhasaposse.org 

You can also help by signing this petition to add ALD to the Uniform Screen Testing SIGN HERE







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Organizer

Dawn Santucci 
Organizer
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