ShareTiny for AleXej

My name is Alexej Fabian and I need your help.

I was born on 18th of September 2019.

When I was only 5 weeks old I was diagnosed with Spinal Muscular Atrophy (SMA).

SMA is very rare congenital disease causing progressive muscle weakness that makes moving, swallowing, sitting, and even breathing difficult.

There are 4 types of this disease. I have the most severe one, type I. First signs are normally showing within first 4-6 months of life. 60% of children diagnosed with SMA I usually not live longer than 2 years.

But there is a solution, gene therapy, which gives me about 90% chance that I will live a normal life . It's called Zolgensma. (you can google it for additional info) 

It’s the latest, most effective treatment that was approved by FDA end of May 2019 and it comes with a price of 2.2 million dollars, so about 1.9 million Euro.

The problem is that this therapy is not paid by any insurance company, because it’s not approved in Europe yet.

My family is currently trying to raise funds for my medical expenses.

So please help me by sending me as much as u want in order to keep me alive.

In any case, sharing my story is much appreciated.

I would like to thank you for expressing your love.
https://www.facebook.com/ShareTinyForAlexej/ 

Something more about the therapy:
https://www.zolgensma.com/what-is-zolgensma 


Here is a more detailed articel written by Forbes.
Forbes - what they ... 


Transparent bank account in Slovakia , where my parents also trying to raise the money:
How much money do they have ?

Kind Regards and gratitude from father Juraj Fabián, mother Andrea Hrušovská and me, Alexej Fabián.

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Donations ()

  • Marek Bohdan 
    • €25 
    • 2 mos
  • Denisa ZAJDA 
    • €5 
    • 2 mos
  • Anonymous 
    • €20 
    • 2 mos
  • Kata Marhefkova 
    • €15 
    • 2 mos
  • Miroslava Grasso 
    • €20 
    • 2 mos
See all

Organizer

Andrea Hrusovska 
Organizer
Nové Mesto nad Váhom, TC, Slovakia
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