In Jose's case, his body is producing almost 5 times more growth hormone that one would expect from a growing 12 year old boy. Many of his other hormones have been "choked out" and his body is having a hard time fighting the loss of these critical hormones. The neurosurgeon at UNC Chapel Hill told us that Jose is in need of immediate surgery because the tumor is significantly larger than anticipated for a 27 year old and is already pressing on his optic nerves which could cause vision loss in the near future. In less than a month we have faced many fears and learned that immediate surgery is necessary to save Jose's life. The doctors explained that acromegaly is a slow acting terminal disease IF NOT TREATED. However, with appropriate treatment acromegaly can be controlled and Jose will continue to enjoy a full and active life.
The tumor caused Jose's hand size to grow so fast in the past year that he went up two complete ring sizes...from a 13 to a 15...and two complete shoe sizes...from an 8.5 to 10.5 . His tongue is swollen which has caused severe sleep apnea, his entire body aches from the hormone imbalances, and he pushes through long work days with excrutiating head aches. The doctors say that surgery is the only option to keep Jose's entire body from breaking down completely.
In June 2014 Jose undwent his first surgery and now we are heading into a second surgery (February 9, 2016) and possibly a series of radiation treatments this spring. Life long treatement is a scary thought but we are thankful for every day God gives us.Thank you all for being such a special part of our lives and this journey....
-Marie (wife and author of this post)
-Nayelyn (adoring 5 year old daughter)
-Jose (the most amazing man and father we know.)
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