Love for London
Donation protected
London was born with a severe congenital heart defect 5 years ago. She was born with single ventricle heart, which left her with only half of her heart functioning. In her first 3 years of life, London has had 3 open heart surgeries to help aid her heart in pumping blood throughout her body. Two years after her last open heart surgery, the Fontan, London has developed a rare and severe condition that is associated with her heart. Since this condition is so rare, there has yet to be a cure other than a heart transplant up until now.
The condition she has is Plastic Bronchitis. Her new heart circulation (the Fontan) is putting an extra load on her liver. Doctors believe that London's lymph vessels may have attached to her lungs and are leaking fluid into her lungs. The fluid builds up in London's lungs creating a cast of her bronchial tube. London coughs these casts up daily and with each cast there is a risk of it blocking her airway. Since this diagnosis in April, London has had 2 week long hospitalizations in the cardiac ICU, 2 bronchoscopies, and a heart catherization. Even with 3 1-hour long breathing treatments a day including a cystic fibrosis vest, London produces casts and struggles to breath every day.
London has maximized her treatments here in Arizona, and nothing is helping. The Children's Hospital of Philadelphia has a newer (London will be the 3rd Fontan kid getting this procedure ever) breakthrough lymph procedure in which the doctors will map out her lymphatic system and glue off London's lymph vessels. This is the only hospital in the nation doing this procedure right now. In June, London's family will be traveling to Philadelphia in hopes that this procedure will cure her of these awful casts. Any donations to help her family with travel & medical expenses would be much appreciated!!
The condition she has is Plastic Bronchitis. Her new heart circulation (the Fontan) is putting an extra load on her liver. Doctors believe that London's lymph vessels may have attached to her lungs and are leaking fluid into her lungs. The fluid builds up in London's lungs creating a cast of her bronchial tube. London coughs these casts up daily and with each cast there is a risk of it blocking her airway. Since this diagnosis in April, London has had 2 week long hospitalizations in the cardiac ICU, 2 bronchoscopies, and a heart catherization. Even with 3 1-hour long breathing treatments a day including a cystic fibrosis vest, London produces casts and struggles to breath every day.
London has maximized her treatments here in Arizona, and nothing is helping. The Children's Hospital of Philadelphia has a newer (London will be the 3rd Fontan kid getting this procedure ever) breakthrough lymph procedure in which the doctors will map out her lymphatic system and glue off London's lymph vessels. This is the only hospital in the nation doing this procedure right now. In June, London's family will be traveling to Philadelphia in hopes that this procedure will cure her of these awful casts. Any donations to help her family with travel & medical expenses would be much appreciated!!
Organiser
Lisa Hassebrook Madrid
Organiser
San Tan Valley, AZ
