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Magic Foundation Convention Trip

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2 of my 3 babies have recently been diagnosed with a rare genetic form of primordial dwarfism called Russell Silver syndrome. I am very very overwhelmed with this info and need to get my children into see a specialist. I have found the perfect opportunity at The Magic Foundations annual convention in Chicago in July. They both will have the opportunity to see 2 leading worldwide specialist and I will be able to learn a lot about the syndrome. In addition we will meet other families who have children with this rare disorder. Due to all of the medical expenses we have incurred we can not fully afford to make this trip. Any help would be deeply appreciated. The largest expense is our plane fare from Anchorage Alaska to Chicago Illinois.

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Donations 

  • Manda Ramirez
    • $50 
    • 10 yrs
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Organizer

Rachel Cox-Vandiver
Organizer

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