Amanda is a wife and mother to two young children and a stepson she raised from infancy. She is always taking care of others even when she is not well.
Amanda's illness has progressed to stage 5 (end stage). She has only 15% of her kidney function and is currently consulting with the dislysis unit and transplant center as both will be needed very soon. She has very strict dietary needs and must visit the lab for blood work every week and takes numberous medications.
Amanda needs help with all of the medical expenses associated with treatment. Due to her illness she has not been able to work for nearly a year. Her husband broke his collarbone and was not able to work for 5 months. They had to use all of the funds in their savings. There are a lot of expenses that are not covered by insurance including travel to doctors and labs, prescriptions medications and soon there will be more. There will be expenses associated with dialysis that are not covered as well as the transplant.
Amanda was diagnosed at age 16 with Polycystic Kidney Disease, a genetic disease that has claimed several members of her family. She developed high blood pressure from the disease at age 20 and has been on medication to controll it since. Her preganancies were very difficult due to the PKD and she was on bed rest with both. Her son was born 10 weeks early due to complications.
Amanda's mother, aunt, grandmother and uncle have all passed away from complications caused by PKD. In addition to the physical suffering, this contributes to her emotional suffering. She is determined to win this battle for her family.
Her goal, when she is well enough is to start a non-profit to increase awareness of PKD and how many people it impacts. More than 600,000 people in the US have it and very few people know about it. There is no cure. The only treatments are dialysis and transplant. The disease causes so many health issues including pain, exhaustion, brain aneurysms, swelling, enlarged abdomen, itching, nausea, kidney stones and so much more. The hardest part is that people don't understand the suffering that PKD patients endure even thought they may look ok.
Please help Amanda win this fight so that she can be there for her children and her family and can continue to fight for others affected by this disease.