Going the Extra Mile for Rare Disease Patients

Going the Extra Mile for Rare Disease Patients 

We are Honeycomb Health, a start-up working to empower every patient suffering from a rare disease by providing them with the ability to securely store, access, and share their health information, all for free. We also raise funds for research via co-branded online storefronts, supporting any and every rare disease advocacy group that seeks our help.

Why is it so important?

Because a single rare disease affects comparatively few people, the courses of action for recovery or treatment are typically unknown—even to most doctors. This forces patients to search for specialists who can take the time to understand their needs, or find ways to spur the necessary research themselves.

This is the world that rare disease patients live in. Manually managing endless medical data from different doctors, tracking test results in 15lb binders, and building support where they can. They end up constantly having to justify and record their own diagnostic tests, advocating for themselves in ways patients of more researched diseases rarely, if ever, consider.

Honeycomb Health aims to change that, and we need your help.

Honeycomb Health will empower patients suffering from rare diseases by providing them with the ability to securely store, access, and share their health information all in one place. They will be able to share their data with health care providers, loved ones, and future generations that might be afflicted by the same disease. By owning their data and uniting with other patients like them, members of Honeycomb Health will have a better chance at pushing for- and participating in- clinical trials. Honeycomb Health will be the hub where large groups of patients afflicted from the same disease can connect with the organizations with the means to help them. Let's end the isolation and wait-time so many rare disease patients face on a daily basis. That is the world we are working to realize.

Help us finish the first phase of Honeycomb Health. Your donation will go toward our phase one user testing, user experience designs, and development costs.

Would you like to help?

Help us finish the first phase of Honeycomb Health. Your donation will go toward our phase one user testing, user experience designs, and development costs —as well as provide needed funding for research via our free online storefronts. Everything you give will be 100% tax deductible

It would mean so much, both to us at Honeycomb and to the many underserved patients of rare and ultra-rare diseases.  Thank you!

Sincerely,

The Team at Honeycomb Health
www.honeycombhealth.com
Honeycombhealth.store 

Honeycomb Health is a part of GTO Greater Good, a Certified 501(c)(3) Nonprofit created to provide sustainable and impactful programs for people around the globe.


Side Actions: On the road with rare 

Rebecca Trahan is a rare disease patient (a SCAD survivor) and design rock star. For the past 10 years, she has been on a mission to support fellow survivors and make all women aware that heart attack is their #1 health risk. Now, she’s hitting the road. 

Rebecca is driving over 10,000 miles across the country to network with every group of rare and ultra-rare disease patients, and meet all of them in however many cities, towns, or neighborhoods they find themselves in. Rebecca aims to raise awareness of all rare diseases and obtain funding to invest in research, as well as in the development and testing of Honeycomb Health.
  • Elizabeth Izard Apelles 
    • $50 
    • 11 mos
  • Jill Whitten 
    • $200 
    • 11 mos
  • Jolie Shay 
    • $100 
    • 11 mos
  • Barrie Cullinan 
    • $100 
    • 11 mos
  • Jeanne Kovalski 
    • $25 
    • 11 mos
See all

Fundraising team: Equipo de recaudación de fondos (2)

Elizabeth Izard Apelles, CEO, Greater Than One Group 
Organizer
Raised $200 from 2 donations
New York, NY
Rebecca Trahan 
Team member
Raised $575 from 6 donations