Support for the Galactosemia Conference
Donation protected
As most of you know our son DJ has a rare metabolic disorder called Galactosemia. The Galactosemia Foundation (previously Parents of Galactosemic Children) has been in our lives since he was an infant. They have been a constant source of information and of support!!
Every two years the Foundation hosts a conference for families, friends and professionals. DJ and many other kids and adults with Galactosemia come to these conferences. Most often it will be the first time they have ever met another person with Galactosemia. It's one of DJ's favorite vacations, as he feels "at home". It's a place where he doesn't have to explain himself or his disorder, they all just get it.
Galactosemia is such a rare disorder that there is very little money for research or anything else.These conferences are paid for by the generous donations of all who are affected by Galactosemia. As you can imagine these conferences are expensive and time consuming to host. The entire Foundation is run by volunteers, parents of children with Galactosemia, who donate hours and hours of their time year round.
This year the conference will be held in July in Orlando, Florida. If you are willing to help by donating to our cause it would be greatly appreciated. If your not able to donate finacially, we understand and feel it's donation enough to make as many people as possible aware of this rare disorder.
All donations are welcome, no matter how small. It all adds up!
Thank you!!
Every two years the Foundation hosts a conference for families, friends and professionals. DJ and many other kids and adults with Galactosemia come to these conferences. Most often it will be the first time they have ever met another person with Galactosemia. It's one of DJ's favorite vacations, as he feels "at home". It's a place where he doesn't have to explain himself or his disorder, they all just get it.
Galactosemia is such a rare disorder that there is very little money for research or anything else.These conferences are paid for by the generous donations of all who are affected by Galactosemia. As you can imagine these conferences are expensive and time consuming to host. The entire Foundation is run by volunteers, parents of children with Galactosemia, who donate hours and hours of their time year round.
This year the conference will be held in July in Orlando, Florida. If you are willing to help by donating to our cause it would be greatly appreciated. If your not able to donate finacially, we understand and feel it's donation enough to make as many people as possible aware of this rare disorder.
All donations are welcome, no matter how small. It all adds up!
Thank you!!
Organizer
Evelyn Arison Rice
Organizer
