Help to find a cure

New update

Hi my name is Ann Marie 

Thank you for viewing my Go Fund me

This is an update to my story below.

10 years ago I was infected whilst on holiday in Turkey source was unknown at time. 

Over the years my health has deteriorated and I require constant care and often bed bound.

After years of searching it looks like I initially contracted Lyme disease which was never treated at the time.

My health over the years has deterioated slowly and has resulted in severe affects to my immune system motility and nervous system.

Earlier this year I've had seizures aswell. 

Some long terms symptoms of Lyme include

Intermittent fevers, chills, and sweats

Chronic inflammation

Aches and stiffness

Numbness and tingling in the limbs

Dizziness and shortness of breath

Tremors

Respiratory infections

Sore throats

Stomach pains

Heart palpitations and irregular heartbeat

Anxiety and paranoia

Rage

Hallucinations

Hearing sensitivity

Dysphonia (vocal cord damage)

New food allergies

Multiple-chemical sensitivities

Seizures

This is on top of severe gut issues from bacterial overgrowth.

I am only able to take nutrition via a tube I cannot tolerate and medications as my body is not able to function without severe side effects.

I am now in the position to offered care with a Lyme disease Dr who has great success in treating people like me.

The treatment is very expensive and will take many months for me to recover. I will need a team of people to get me through this.

I have nhs nurse and carers coming a few times a week and support from counsellors and therapist to manage my day to day care. This is all paid out of my own pocket. Which I struggle with having a family and two young children. 

Financially we have a difficult situation, my partner works full time and I rely on my family and a nanny that I have to pay for to care for my children. We are not in a position to get any extra help due to my partner working. 

The effect of not being able to care for my own children destroys me as a mother and every day I get worse mentally and physically.

The success rate of treating someone with long standing Lyme disease is complex and can take years. 

The NHS don't have the ability to successfully test or treat longstanding Lyme.any patients are left being told they have chronic fatigue or fibromyalgia. Many patients have to go private and seek specialist clinics abroad. Sadly this isn't an option for me as I'm too weak to travel.

I would like nothing more than to be healthy again and healed with a good quality of life and recieve the care I need.

To start I need to raise 25 k for help with treatment alone. I will also need further help with personal care and support for my family. This is likely to increase as I will need extra help like more care for me.

This again is not available via social care as my partner works and we fall in the the category of not being eligible for benefits but also not have any money due to having to pay for everything ourselves.

I've had to increase my goal as much of the money I have raised has been used for lots of tests in painting the picture as to where I am now. So hence why the goal has changed. 

This will be a mammoth journey financially , emotionally and physically fore and my family.

With the help of this Dr I hope that with small steps I can make my life better with his help.

Thank you so much for reading my story and your help to pay for my new treatments. Without support I don't know what my future holds. Please help me to keep my hope.

Ann Marie

My story

I'm 41 years old. 10 years ago I went on holiday to Turkey and caught a bug. I thought I had food poisoning from the food. But it never went away. Over the years I've had many tests which resulted in no significance. My pain is under my right rib and in to my back and right shoulder. 

The decision 3 years ago was to take out my gallbladder but that didn't fix things and only made me worse. When it came out I was unable to eat felt full all the time. I have nausea, low blood pressure, no appetite, the pain is still in the same place. I have problems going to the toilet. I get these breathing issues where I'm full of gas and it pushes on my diaphragm. I suffer from debilitating brain fog like I'm living in a dream all the time. I had a gastric emptying study 3 years ago which showed severe delay of my stomach and bowel. The diagnosis was gastroparesis. The past year I have been fed by a nasal feeding tube but I was unable to tolerate this and continued to loose weight. In june I weighed 6.5 stone, Or 91 pounds ,and was admitted for tpn. This is total parental nutrition and is fed via a line in my chest in to my heart. On speaking with my dr recently he does not know what's going on for me. The nhs are still unsure as to why I cannot eat or drink. So I'm now having to seek help myself. I'm seeing a private dr who also works in functional medicine. So basically they help those where the drs cannot figure out what's going on. I have a few routes that I can consider with my health but the nhs has reached a point where further investigations are not an option for them. I'm quite a stubborn person and I dont ask for help unless I really need to. I'm in that situation now. Most of my days are at home as I dont have much energy or I'm too sick. My symptoms include

Nausea, brain fog, exhaustion,fatigue, abdominal pain, unexplained seizures, passing out, tremors, gas, confusion, severe anxiety, inability to concentrate, body jerks, feeling toxic, lack of taste. Vitamin deficiencies. 

I really want my life back again. So if anyone cant help contribute to my cause I would be eternally grateful in helping to get me better. Funds will go to doctors appointments, tests and medication.

Thank you for taking the time to read about me.You can also follow me on Instagram @annie_needs_you

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