Help Harlowe fight Late Infantile Batten Disease

All sponsorship proceeds benefit this year’s partner, Harlowe Grace Ilse. On April 2nd, 2021, Erica Grabczyk and Ryan Ilse’s amazing three-year-old daughter Harlowe was diagnosed with Late Infantile Batten Disease (CLN2).

Batten disease is an extremely rare and devastating genetic neurological disorder that effects every aspect of a child’s life. As Batten progresses, children suffer cognitive impairment, progressive loss of vision, hearing and motor skills, and eventually dementia. Life expectancy for children with Batten is 6 to 12 years.

Luckily, there is a treatment available for this type of Batten disease – a treatment that will continue throughout the entirety of Harlowe’s life. While this treatment is not a cure, your participation in sponsorships from this golf outing will be used to help give Erica and Ryan the hope of slowing the effects of Batten disease until a cure can be found.
  • Linda Lindstrom 
    • $125 
    • 11 d
  • square donation 
    • $5,340 (Offline)
    • 13 d
  • cash at dinner 
    • $590 (Offline)
    • 13 d
  • Silent Auction 
    • $8,286 (Offline)
    • 13 d
  • Venmo Collections 
    • $588 (Offline)
    • 13 d
See all

Organizer

Brock Bauer 
Organizer
Village of Germantown, WI