<img alt="74906351_1699636160295433_r.jpg" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1699636160295433_r.jpg" width="100%" /><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692735380875630_r." width="100%" />
<div><strong>JOHN KIRBY</strong> is One of The Most beloved, revered, adored &amp; celebrated humans on earth!!! As the premier Acting Coach in Hollywood for over 50 years, he has transformed thousands upon thousands of actors; many into household names. More than his immeasurable talent, he is a true lover of people, an encourager &amp; a giver! His golden reputation and keen sensibility have gleamed him the title of: “<strong><em>An Actor’s Guardian Angel</em></strong>” by established colleagues in The Film Industry. John's circle of influence is not even quantifiable!! Simply put, <strong><em>John Kirby </em></strong>is A <strong>National Treasure </strong><a href="https://www.thejohnkirbystudio.com" target="_blank" rel="noreferrer noopener"><strong><a href="https://www.thejohnkirbystudio.com" target="_blank" class="" rel="nofollow noopener noreferrer">https://www.thejohnkirbystudio.com</a></strong></a>
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692735473535025_r." width="100%" /><img alt="74906351_1699636392225055_r.jpg" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1699636392225055_r.jpg" width="100%" />
<div>After watching the video above, you will learn about the devastating news of a neuromuscular disorder diagnosis. We are in complete shock &amp; Our hearts are crushed. We also know that John has many Angels surrounding him during this challenging time! *Our goal is to get John the resources he needs to overcome this challenging disease. Ultimately getting him back to coaching &amp; teaching his amazing acting classes every week! <strong>The</strong> <strong>John Kirby Studio </strong>is a safe-haven, a 2nd home for Actors to explore their craft in a sacred space under the guidance of a loving, insightful, passionate &amp; brilliant Acting Teacher. His actors/students miss him deeply.
</div><img alt="74906351_1693086634456963_r.jpg" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1693086634456963_r.jpg" width="100%" />
<div>WE are confident that this goal is possible &amp; are calling all Angels to his aid! Please join us on our Crusade to help our beloved Johnny conquer Lou Gehrig's Disease!....❤️‍
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692735676996239_r." width="100%" />
<div>Many factors make <strong>ALS</strong> [amyotrophic lateral sclerosis] an incredibly expensive disease and journey, both for the individual diagnosed and the family members around them. The average cost of living with ALS is <strong><em>$150</em></strong>-<strong><em>$250</em></strong>K annually. Navigating through insurance systems can be a bureaucratic nightmare!
</div>
<div><br />
</div>
<div>The most costly expense is <strong><em>24/7</em></strong> live-in Caregiver support which John requires. The average cost for a paid Caregiver is <strong><em>$2,100</em></strong>-<strong><em>$3,500</em></strong> per week. (NOT covered by Insurance)
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_169273599480665_r." width="100%" />
<div>Doing things that might feel like routine parts of our days can require a lot of devices and human resources to accomplish the same tasks. For example, to get to a medical appointment, an individual might need a special van and someone to drive that van, to be able to take them in whatever wheelchair or assisted walking device they may
</div>
<div>have.
</div>
<div><br />
</div>
<div>Some might have a care partner who’s able to handle most of their day-to-day needs, but in other situations, they might need additional support. There are many costs that can be uncovered throughout this journey. It will be highly variable from individual to individual, but it’s an expensive disease.
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692736145921127_r." width="100%" />
<div>The power wheelchair can be an extremely expensive. Individuals might have to make modifications to their home, handrails or elevated toilet seats. Often these are done based on the advice of someone who can help—an occupational therapy [OT] or a physical therapy [PT]—thinking about what support an individual needs based on their symptoms and limitations.
</div>
<div><br />
</div>
<div>There are also costs with things like needing a 24/7 ventilator called a TRILOGY machine/BiPap. Also, a cough assist device. (DME)
</div>
<div><br />
</div>
<div>Specialty medications come with a hefty price tag. Many Not covered by Insurance RX coverage.
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692736829176855_r." width="100%" />
<div>There are also the costs of the medical care itself:
</div>
<div><br />
</div>
<div>The routine follow-up visits required with the multidisciplinary team, whether that’s a neurologist, a pulmonologist, PT, OT, speech, nutrition, genetics, or a mental health therapist to help cope with some of the depression that they might be experiencing.
</div>
<div><br />
</div>
<div><strong>These costs can add up both in terms of financial constraints and time</strong>.
</div>
<div><br />
</div>
<div>We’re very excited about many of the therapies that are approved or gaining approval, but a lot of times these therapies are incredibly expensive. They might not be covered by insurance, and the out-of-pocket costs can be insurmountable for some families. Families may be forced to decide between whether they want to go bankrupt over a medication vs not take the medication at all. It’s an incredibly stressful component of care for some as well. -Laynie Dratch, ScM, CGC.
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692736985650776_r." width="100%" />
<div>Jennifer Roggenbuck, MS, LGC: The factors that drive ALS costs are numerous, and individuals with ALS have a lot of medical and other needs that we try to address. That includes the cost of medications. We have some approved medications to treat the various aspects of ALS, which includes mobility assistance. In many cases, individuals with ALS need a wheelchair at some point; those machines are quite costly. We often work to develop communication devices, and that technology is also expensive. Some individuals with ALS need home health care or in-house therapy to maintain quality of life. All those things are quite expensive, and those are costs incurred by the patient. Family members often are impacted too because they have to take time off work or maybe even quit their jobs to care for their family member with ALS. The economic impacts are wide ranging. These costs accumulate over the years.… 
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692737103119824_r." width="100%" />
<div>WE LOVE YOU JOHN!!! There is no one like YOU!
</div>
<div><br />
</div>
<div>Grateful for all your gracious Love &amp; Support! JOHN will be an OVERCOMER!!
</div>
<div><br />
</div>
<div>Thankful for our friends @ <a href="https://augiesquest.org" target="_blank" rel="noreferrer noopener"><a href="https://augiesquest.org" target="_blank" class="" rel="nofollow noopener noreferrer">https://augiesquest.org</a></a> currently searching for a cure....
</div>
<div><br />
</div>
<div>Sincerely with Love, Hope &amp; Gratitude,
</div>
<div><br />
</div>
<div>Nathan Nesbitt &amp; The John Kirby Studio Fam
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/74906351_1692737934973384_r." width="100%" />
<div><br />
</div>

Mary Jane Collier

Paul Needleman

Molly Evensen

Valarie Miller

Anonymous

Bridget Hoffman

georgeanne rice

Jacob Brown

Joseph R Sicari

Eugene Loveland

Risa Sheppard

Lori Abrams

Carrie Freeman

Gail Garland

An Actors Guardian Angel; Calling All ALS Angels!

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

be_supporter_comments_enabled_supported_funds

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

An Actors Guardian Angel; Calling All ALS Angels!

Still $153,582 to go. Help us build momentum.