Help for Mattia

Hello friends and family. I am writing with the hopes of getting together little by little the funds I need to pay my sono medicali care. Mattia is 10 years old. He was born with some unexplainable symptoms and problems with his motor skills. We were told that it was hypertonia and that it was transitory. In other words that it would disappear with growth. As a child he had a hard time walking and running. He would fall quite often but we hung in there thinking it would just get better. He got somewhat better but still something was not right. We traveled all over northern Italy in really well known pediatric institutes and never really got answers. Every visit was a like a piece to a puzzle but we were never able to finish it. He was diagnosed 2 years ago with syringomielia. This is a small syringe like accumulation of spinal fluid. They found this in his neck area. Aside of this new discovery he at his tender age he is developing a severe scoliosi which is not normal. We have always asked why and what Mattia had, answers were always cautious and vague. Then this week I sent Mattia's medical file to a specialzed institute (Chiari institute of Barcelona) and for the first time in years of doctors visits he was diagnosi with Filum disease (the video poster explains a bit what it's about). We are now blessed with an answer and solution but the real challange is the surgery and it's cost. Unfortunately the national health care system does not cover this surgery. In Italy the surgery for this disease is almost impossibile. This is why so many go to Barcelona to this institute. It is a specialzed institute with a state of the art system that nobody in europe has. The technology they use is  less invasive. The surgery costs in and around 20,000 euros impossibile however in the mean we will ask for as many options as possibile. . This is an amount that the average family here in europe could not come up with. As with all families we4 live with the necessary and taking out loan is impossibile with our monthly bills. It is insane to think that there is a cure for your son but you cannot afford it.  Obviously I have to fight hard and figure out a way. I ask anybody if you can offer any help big or small maybe I can make this happen. Thanks for at least for listening. It is hard to put yourself out there and straight out ask for help but I think anyone for their child would do anything. I have faith and believe God will bless him. God bless to all of you.

Donations

  • Margherita Moi 
    • €50 
    • 10 mos
  • Carmen Mendolia 
    • €150 
    • 11 mos
  • Sandie Quinones 
    • €1,000 
    • 11 mos
  • Anonymous 
    • €100 
    • 11 mos
  • Cari Eno 
    • €50 
    • 11 mos
See all

Organizer

Julie Marie Quinones 
Organizer
  • #1 fundraising platform

    People have raised more money on GoFundMe than anywhere else. Learn more

  • GoFundMe Guarantee

    In the rare case that something isn’t right, we will refund your donation. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more