Help Caycee Lynne Hear

This is my niece Caycee, this is the letter my sister keeps sending out looking for assistance with no success. Jessica and Jesse are feeling defeated with the insurance company as they have been going back and forth with them for months, to receive denials at every turn. Caycee Lynne is a bright, sweet, and beautiful little girl that is always happy. Our families goal is to see Caycee recieve the appropriate tools for her speech and language development.  With this one piece, so much more will come along for her to be successful.  Thank you so much in advance and God Bless. To Whom it may concern;  Please let me tell you a little about my daughter. Caycee Lynne was born 4 weeks early via emergency c-section. She was immediately intubated upon delivery as she was not breathing on her own, and rushed to Childrens Hospital in Boston. For the next 5 days, Caycee and I were separated as I recovered in one hospital and she in the NICU in Boston. Thankfully my husband was able to stay with her the whole time and my family stepped in and took care of our 3 boys. Caycee was brought back to me at Winchester hospital and remained in the Special care nursery for 12 days.Caycee had her newborn screening at Childrens and again in Winchester which we were informed she failed her hearing test on the left side. We were told to follow up with an audiologist at Childrens Hospital, that was routine and probably nothing to worry about. We had her sleep tested in May, with results of a profound hearing loss in the left ear. We were referred to early intervention services for Caycee and follow up hearing test to monitor her "good ear" every 12 weeks. Caycee had an MRI in October that showed she has a malformation of the cochlear and vestibular with no cochlear nerve. Meaning, a traditional hearing aid will not work for Caycee because the nerve is not present to trigger any amplification in that ear. The vestibular malformation causes balance issues, so she will be delayed significantly in sitting up, crawling, walking, standing etc.There is an amplification devise that will help Caycee. It is called BAHA softband. Bone Anchoring Hearing Aid, that will pick up sound on the left side and transmit it through bone to her "good ear." Once we were given the green light for this device, after getting a second opinion making sure this was what was good for her, I called the insurance company. We have denied payment of hearing aids.In November Caycee developed a severe ear infection in her right ear that left her with a moderate to severe loss in her "good ear." The fluid in her ears did not leave with antibiotics and the only way alleviate it was to do surgery. In January she had Eustachian tube surgery in the hope that draining the fluid and keeping the ear canal open, it was to regain her hearing in the right. Fortunately after 8 weeks post surgery, she has regained her "good ear" status. The doctors told me I could go ahead and try again for the BAHA. I'm reaching out for some support, our insurance company is still denying coverage. Caycee is almost 11 months old and significantly delayed in her motor skills and I am extremely worried about her speech and language development.  My husband and I made the decision for me to stay home with her full time, it was not an easy decision to become a one income household, but it is what is best for our children right now. It is extremely disheartening to know that the insurance company does not consider hearing loss to be a medical condition. It is unfortunate that they continue to tell me that she is too young for any interventions when her doctors are calling this her "crucial time of learning and development."I am respectfully requesting financial support for my daughters BAHA so she can successfully navigate through these crucial developmental years.Respectfully,

Donations

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  • janet ford 
    • $200 
    • 86 mos
  • Jodi Wallace 
    • $25 
    • 86 mos
  • Connie Patti 
    • $50 
    • 86 mos
  • Brian Beck 
    • $20 
    • 86 mos
  • Stacy & Ray Rochefort 
    • $50 
    • 86 mos
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Organizer

Kim Currie Marvin 
Organizer
Middleboro, MA
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