Lacy's Medicine

My sweet Lacy was diagnosed with Epilepsy when she was just 4 months old. Her seizures have gotten progressively worse over the years and she has failed almost all treatment options. She has tried every single Anti-Epileptic drug available except for one that has such devastating side effects it could kill her. She was hospitalized in 2009 and put in a medically induced coma for almost a month. She has been on the Ketogenic diet which made her so unhealthy she was starting to have other health problems in addition to seizures. She had surgery in May of 2013 to implant a Vagus Nerve Stimulator which connects to the Vagus nerves in the neck leading to the brain. This has helped a little, but she is still suffering 100's of seizures a day, most days. Our next option is to "cut her brain in half" which I am unwilling to do. There is no guarantee that it will work, and could have devastating effects. In the summer of 2013 I began researching CBD and the medicinal effects for Epilepsy. Desperate to save my daughter's life, rather than let Epilepsy slowly take her life away, I chose to take the path of a very controversial, socially unacceptable, alternative medicine. What if it were your child? After a long and somewhat difficult few months, Lacy started taking CBD on November 26th, 2013. Her cognitive skills are improving everyday and her focus is amazing. Slowly her seizures are decreasing and she is no longer in a groggy, foggy state all the time. For the first time I can look into my daughters eyes and see HER!! She has weaned off one of her anti-epileptic drugs and has gone from 18 pills a day down to 7. Of course all of her pharmaceutical meds were covered by insurance, but unfortunately her new medicine is not. Plus I have to travel to Colorado Springs every month to pick up her meds!! Her first month for the cost of her new medicine was $160.00. Her second month was $325.00, her third month was $450.00. (At this third dose we are starting to see improvements) and the cost keeps rising. Her next few months of medicine may be double the cost. My goal is to keep going until these ugly seizure monsters are gone...I will NEVER give up hope for my daughter! I am a single Mother with a full-time career and I work very hard to provide everything I can for my children. I will do whatever it takes to continue to be able to provide this medicine for my daughter. Any donations would be GREATLY appreciated :) :) :) much love to all of you!!
  • Anonymous 
    • $20 
    • 66 mos
  • Anonymous 
    • $20 
    • 67 mos
  • Anonymous 
    • $20 
    • 68 mos
  • Anonymous 
    • $20 
    • 69 mos
  • Anonymous 
    • $20 
    • 70 mos
See all

Organizer

Tami Sanders Baldwin 
Organizer
Fruita, CO
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