Charlotte

Our 4 month old daughter Charlotte has been diagnosed with a rare genetic disease called Spinal Muscular Atrophy. She is in need of a medication that is life altering for children with this condition. As in can help stop regression and enable her to reach milestones she would otherwise never reach. The medication its self is very expensive and our insurence is denying us the medicine. So we have decided it's time to go forward and contact a medical lawyer and a few organizations to help us overturn the denial. We need help and we are doing everything we can to get this for her. Please if you can help we need it! Thankyou so much for taking the time to read alittle on our baby girl.