Medical expenses
Donation protected
Hi my name is Jacklyn and I was recently diagnosed with Chiari Malformation and Syringomyelia. Many of you may have never heard of this, but it is actually a very rare and debilitating illness, where the brain stem is being forced down into the spinal canal which then causes CSF (cerebrospinal fluid) to build and become a syrinx (cyst) on the spinal cord. This syrinx then cause pressure on the spinal cord and nerves. Unfortunately, this can only be helped with Brain Decompression surgery (craniectomy). This illness is rare because of the unknown. I ask that everyone take their health serious and be advocates for their own body, as this was a 7 month long process to diagnose. I strongly urge that you take your body and what its telling you very serious. Anything will help and everything is greatly appreciated.
Organizer
Kenneth Soto
Organizer
Old Bridge, NJ