Emerald Grace Preemie Fund

Hello, my name is Emerald Grace Edmiston. My family calls me Esme. On December 1, 2018 I made my grand entrance into this world. My mommy was 26 weeks along in her pregnancy. I was so little I weighed 2.6lbs. I'm sure my daddy could fit me in the palm of his hand. When my mama pushed me out we weren't able to touch each other and bond. I was having a hard time breathing and the doctors put me inside a plastic bag because my skin was so sensitive. I was scared but a team of doctors and specialists from Children's hospital worked on me and made sure I would be safe. They took me to their Neonatal intensive care unit which I've been living at since that day. During my stay here I've had lots happen to me. I had a whole body rash that lead me to staph infection and a spinal tap done. My right lung collapsed and I've been fighting pneumonia and a lung infection for a long time. I've been on antibiotics for 6 weeks and it still hasn't cleared up. I have picc lines, breathing tubes, IVS and a feeding tube in. Somehow I got an infection in my blood that lead to a really bad sepsis infection. I've had so many blood transfusions and lumbar punctures because of this. I've been fighting really hard. The doctors say I have a hole in my heart, a hole in my heart valve along with a blood clot in there. They are working on a plan for me. My parents say this is one roller coaster ride they didn't sign up for. But they do their best to stay strong for me. Life has been really hard on my parents and big brother while I've been away. Daddy has been working really hard for our family. My mama hasnt been to work since the day I was born. She comes here everyday to see me. Driving back and forth multiple times a day and paying for parking has become such a issue alone. On top of their everyday and monthly bills and expenses it's taking a toll on them. They haven't been able to catch up and buy me the things I need when I come home. I'm here to ask for help on my parents behalf. We don't know what the future holds and what kind of financial burden this will turn out to be. They are just seeking help to get back on their feet. Any amount given out of the kindness of your heart will touch their lives greatly. It is one less meal they have to worry about. I really like my nurses and roommates here in the NICU, they have all been nice and kind to me. I'm looking at another month and a half stay here with them if everything goes to plan. I am doing all I can to check out of here and finally get home to meet my big brother Judah. Please keep me and my familia in your prayers. Thank you for reading my story. Xoxo Baby Esme