Help Fund Emily's Support Conference

Emily is a smart, energetic, funny teenager who brightens our days.  She also happens to have a very rare, genetic disorder known as Phelan-McDermid Syndrome (22Q13 Chromosome Deletion Syndrome) which affects less than 1000 people worldwide. 

Emily has severe developmental delays in all areas as well as neurological and mental processing issues and seizures. 

Every other year, the Phelan-McDermid Syndrome Foundation hosts a familiy support conference.  This is the only opportunity families with this disorder have to meet other children like theirs and learn abouth research updates, new therapies and different ways our families can continue to embrace and support each other. 

The 2014 Conference, "Embracing Today, Empowering Tomorrow", is being held in Orlando, Florida from July 23 - 26.  We are trying to raise funds so our family can attend this conference and share Emily with other families.

Any donation, small or large, is much appreciated!  Thank you!