Those of you that know me know this is very hard for me to write, as I do not like to as for help. You see, about 15 years ago Sarah came down with a monstrous disease called trigeminal neuralgia which you can learn more about in the following link:
It is a very debilitating disease dealing with the facial nerves. There is no cure for this pain, only medications and procedures that can put it into remission.
For many years, Sarah has been able to somewhat control the pain with a long list of medications. Some of these require monitoring every three months to make sure that there are no toxic levels in the liver.
Over the past year the pain has gotten worse, with the medication helping less. Her neurologist put her on a new medication which has been helping most of the time, but she still has some significant breakthrough pain. This medication has left her hardly able to function. She has not been able to drive herself or maintain enough focus to function at work since the end of October.
Sarah finally decided to have an operation called microvascular decompression (MVD). This is the most invasive surgery in the treatment of trigeminal neuralgia, but also is usually the most successful. For more information watch this video:
Due to complications during the surgery with bleeding, they were unable to complete the operation. Sarah developed a small blood clot in her head, along with other minor issues caused from the surgery, and was sent home to heal up. She is undergoing a round of blood thinners to treat the clot and a plan is in place to try to complete the surgery again at the end of March.
Thank God we do have insurance. But with mounting copays, medications,other miscellaneous expenses, and regular household bills things are getting very tight.
I was laid off in January which was good and bad. Good because I have been home to care for Sarah...bad that income took a hit on unemployment.
So with that I am asking for any amount of help that can be given both for medical bills and expenses now, and ones that will be coming in March. Any little bit will help.
Thank you all for taking the time to read our story. Please share with your friends as well. Not only to help Sarah, but to raise awareness for this rare disease.
God Bless, Pete
- carolyn bronz
- Bushey Paving
- Enosburg Track Team
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