brayden

we do not like to ask for help..we both are very independent and work full time to try to do it on our own and try to make ends meet....but now we are stuck and dont know what else to do. our hospital is 5 hours away from home so are looking ahead at the transportation cost and lodging alone and it is going to be tough for us. we can not stay in the ronald mcdonald house until it becomes more long term..if we are lucky that will be after transplant. february 6th is the start of our newest journey we will be in the hospital for 5-10 days....then shortly after this stay we will be driving back to lucile packard children's hospital every 2 weeks for at least 3 months... then it will go to monthly if braydens body reacts well to the treatment....his treatment is ivig and it takes 18 hours to give him... which could land us in the hospital for 3 days each treatment....this all depends on how he does. it could be longer or shorter hospital stays. we are in the fight of our life trying to save our son & get him listed for a heart transplant. which he could be listed by valentine's day...while trying not to lose everything. we understand if you can not help. we only ever wanted to ask for prayer. this is extremely hard on us just to ask for help. we thank you all for your support, & love during this crazy journey we call life.