Emily Rose is a beautiful baby girl who was just diagnosed with an extremely rare, incurable genetic disorder called Leukodystrophy. We are coworkers of her mom and are helping raise funds for her family, the Wagners from Oxford, MA. Because the disease is so rare, doctors don't even have tests for all of the different types and so aren't even able to say how much longer Emily will have, just that the family should "enjoy every moment with her."
The Wagners are a loving, hardworking, and proud family. They are always ready to go out of their way to help others but we knew that they would never ask for help, so we decided to start this page. The road with terminal illness is a long one. Every hour that a parent works is one precious hour less with Emily - but every day brings a new financial challenge. Although it has only been 3 months since Emily's diagnosis, out-of-pocket medical bills already far exceed $2,000.
Please take this opportunity to consider helping this amazing family continue to fight for answers and care for Emily. A donation of any amount would help defer the endless costs of medical bills, gas (for countless and ongoing trips to and from Boston), lost wages due to inevitable missed work, renovations for improved home accessibility, as well as everyday expenses that will continue to pile up. Your consideration is greatly appreciated. If you are unable to donate at this time, please consider "sharing" this page. Thank you and God bless.
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