Help Austin get to MPS conference 2014

Austin is 9 years old and suffers from a rare genetic disorder called Sanfilippo type B. He is missing an enzyme in his body which causes severe neurological damage (as well as in his body but primarily his neurological system). It currently has no cure and no treatment. We joined the MPS society 3 years ago for support as his disease is 1 in 250,000 and we were wanting to be connected with other families. Every year the MPS society holds a conference for families to come and learn about new leaps in research, meet other families affected with all MPS types, as well as celebrate life. Our family has not found the means to be able to attend an MPS conference and it would be incredible to be able to go to the conference in 2014. It is being held in Florida at Disneyworld :) We would love to take Austin and his 2 younger siblings to learn more about his disease and where research is heading, as well as meet other families, and celebrate at Disney! Austin is an incredible little boy and I would love to give him this experience. He fights everyday. His younger siblings are super siblings and give up so much for their brother and they would love to go meet other siblings of children with Sanfilippo and create memories to last a lifetime. If you can donate please know we will appreciate it and if your not in the position please take a second to share this page. Thank you so much and God Bless.
  • Marie Sousa 
    • $50 
    • 79 mos
  • Fostoria grocery patrons  
    • $6 (Offline)
    • 79 mos
  • Barb  
    • $50 (Offline)
    • 79 mos
  • Bryans Market Patrons  
    • $50 (Offline)
    • 79 mos
  • Becky & Mark Riggs 
    • $50 
    • 79 mos
See all

Organizer

Marqueta Johnson 
Organizer
Otter Lake, MI
  • #1 fundraising platform

    More people start fundraisers on GoFundMe than on any other platform. Learn more

  • GoFundMe Guarantee

    In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more