I am Kathleen Jaynes, and I was diagnosed with Multiple Sclerosis 18 years ago. I am grateful I had a fairly benign course of the disease for the 1st 10 years. I then started to have challenges walking, first "wall walking," then using a cane, to now needing the support of a walker. The good news is "“ I'm still walking! However, even that is becoming more and more difficult for me; I had been working full-time as a paralegal up until April of this year when it got to the point that I could no longer continue to work, and I left my job and applied for disability. My incredible husband, Tom Reiter, and I have moved to Arizona where it is considerably more affordable than San Diego so that we could live with the reduction in my income. Tom does everything for me - grocery shopping, cooking, laundry. I am so grateful for his help, but I'd like to be more able-bodied so I can do more than just sit there and look cute! :-D
If you know anything about MS, there are few options available and the best a (U.S.) doctor can offer are so-called Disease Modifying Drugs (DMD's) which may stave off progression for a while, but there is nothing approved in the U.S. to offer real help.
Through the wonderful "virtual" friends I have made on Facebook, I found out about an MS treatment which combines CCSVI and bone marrow-derived stem cells from the patient's own body. I will provide some links below, but suffice it to say that this combination treatment has produced some amazing results. Stem cells, as they do for other diseases, can actually heal and repair the damage caused by the disease. The FDA is on the right track by approving some clinical trials in the U.S. to test the efficacy of stem cells for the treatment of MS, but it will be years before such a treatment is approved, and I don't have the luxury of time. I believe this treatment is a true game-changer, and that we will achieve a future free of MS!
This is a very humbling experience for me to ask for help "“ I've always prided myself on being self-sufficient, but this is too much for me alone. I have been approved to participate in this combination treatment; that's the good news. The bad news is that the treatment is at a hospital in India and the cost is $30,000 (for the maximum amount of stem cells) + travel costs for me and a travel companion.
Here's a link to the clinic: http://www.ccsviclinic.ca/
Here's a link to one of the patients, Deb O'Connell, who has had amazing recovery: https://www.youtube.com/watch?v=52bKBBIdaco
I have personally spoken with numerous MS patients who had the combo treatment in India; all have had improvement and ALL would do it again. This isn't a quick fix - I understand it will take time for my body to repair 18 years' worth of damage, but I truly believe this will stop the progression in it's tracks and allow me to heal. I know it will be hard work to regain my strength and "normal" mobility, but I am up to the challenge!
My life has been so blessed with 2 wonderful children, the cutest granddaughter you could ever imagine, and amazing family and friends. Having this treatment will mean so much to me as it will stop the decline in my health, improve my health, and allow me to participate in a meaningful way in my life and theirs.
If you receive nothing else from my story, count the many blessings in your life "“ I know I do. Thank you so much for reading my story; I am very grateful for your love and support! <3
DonationsSee top donations
- Nancy and Keith August
- Julie Barron
- Joan Pancheri
- Diane and Bob Bishop
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more