Im Baby Evan I was born on September 2,2013 at 36 weeks because mommy had Cholestasis of pregnancy l weighted 7lbs 3oz when I was born I was under respiratory distress and was rushed to the NICU. The very next day I was rushed into surgery because of malrotation they removed my appendix to make room to reset my intestines. I also had serve Hydronephrosis on my left kidney and mild in my right. .So they removed my left kidney. After the surgery I had to have 3 blood transfusions. Shortly after the doctors did a MRI on me to find I had a underlying parenchymal hemorrhage. So if that wasn't enough I tested positive for SCIDs..I have been tested 4 times 2 positive and 2 negative..I have just been retested for the 5th time now waiting for results. I Have a high white blood cell count so I had a bone marrow biopsy done most of the results came back negative. But I have a high risk of developing leukemia. Because I have Noonan syndrome/leopard syndrome and any other possible syndrome that the PTPN11 gene mutation is linked to. I stayed in the Nicu for 6weeks. I now go to biweekly appointments with numerous doctors. Most recently I had Open Heart Surgery on my pulmonary valve on 1/28/14 the next day they found I had fluid around my lungs and had to put 2 tube in my sides to drain the fluid after that my right lung collapsed..over the course of my hospital stay it improved. . Even though I have been though so much in my little life I am a fighter and will continue to do so with my mommy and daddy and the rest of my family and God by my side! !
We Live In East Stroudsburg Pa and travel to New York for Evans appointments at the Children's Hospital a couple times a month.
We are Thankful for your Donations every little bit helps..God Bless!
DonationsSee top donations
- Melissa Chinatomby
- Jeremy Jewth
- Lucy Bangaree-Jewth
- Devan Bangaree
- Dato Ramdhanie
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more