Ramzi's ALS Fund

Hey there, my name is Liana and I'm taking this time to share the story of dad, Ramzi. 

On September 11th, 2020 my dad was diagnosed with ALS (Amyotrophic Lateral Sclerosis) also known as Lou Gehrig's disease. ALS is an extremely rare terminal disease that has no cure. The cause is unknown and is extremely difficult to diagnose. It affects the nerve cells in your brain as well as your spinal cord. In other words, ALS causes your motor neurons to deteriorate, leaving the patient to progressively lose functionality with muscle movement in arms, legs, chest, throat, and mouth. My family and I never really knew about ALS until he was diagnosed. It took several doctor visits and prescriptions for a variety of medical scenarios over the past 3 years until it was finally boiled down to this disease. The average life expectancy for ALS patients is 2-5 years. Amidst all the chaos in 2020, this diagnosis changed our lives forever. 

Ramzi is a loving husband, father, and friend to many. Whether it's his classic dad jokes, his funky dance moves to his favorite songs, or his infectious smile, he never fails to make anyone's day. My dad is one of the most hard working and determined people I have ever known and did well to provide for my family throughout his entire life. We could not be more thankful to have been blessed with the most courageous and beautiful man in all of our lives. 

Unfortunately, we are doing what we can to prolong his life as much as possible, to spend these next long years with him that we can, however the out of pocket costs for treatment and equipment came as a sincere shock to my family. As my incredible mom will be the primary caregiver, I wanted to set up this GoFundMe as a form of relief for treatment costs, house adjustments, and everything else to come. But I also wanted to provide awareness to this awful disease that affects about 20,000 people across the country each year. A portion of this fund will be donated to the ALS Association to assist in research for ALS and aid other families who are also affected by this disease.

Even though there may be no cure, we are still putting up the fight for as long as we can and want to cherish this time with my dad! We want to be a voice and share our experience if it means it can help someone else in any similar situation. Time is our most precious gift and we are taking advantage of the time we have left, to ensure my dad lives out his life in the best way possible. We are so appreciative of the love and support we have already received; anything helps and we hope this gives even a bit of awareness to anyone affected by ALS, through our own experience and our journey to learning more about ALS. Thank you all from the bottom of our hearts. 

-The Marar Family

If you want to learn more: https://www.als.org/

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Donations

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  • Jabra and Hala Kawwa 
    • $200 
    • 14 hrs
  • Ronny and Sewar Sunnaa 
    • $250 
    • 14 hrs
  • Elham Massarweh 
    • $500 
    • 1 d
  • Shirene Massarweh 
    • $100 
    • 1 d
  • Jim & Elizabeth Rauch 
    • $250 
    • 2 d
See all

Organizer

Liana Marar 
Organizer
Escondido, CA
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