Mia’s Medical Mission

Hello! Thank you for taking the time to read this. My name is Kayla, and I am Mia’s mother. Being 26 weeks pregnant, and being transferred to a high risk OB facility , as the baby had clubfeet and a small head, wasn’t nervous enough. Moving forward to about 30 weeks pregnant, I became very itchy, everything made me throw up, and I was in so much pain. I went to my OB that following Monday; and he said my gallbladder shit the bed to the point my liver was not functioning to its full capacity. Knowing my baby’s head was small, they kept telling me that my child was going to be mentally challenged, and asked me several times if I wanted to go thru with the pregnancy. Being diagnosed with ICP, Intrahepatic cholestasis of pregnancy, I had to be induced at 36 weeks , since its deadly to the baby and I. After 48 hours of labor, my beautiful baby girl made her entrance vaginally. She spent 3 days in NICU, and finally came home with me, after spending 3 days in a nursery. They noticed she did have hip dysphasia, and clubfoot with one foot being vertical talus, which are both treatable. Moving forward, we did a chromosome test to see if we could reveal anything as to why she has such a small head . The test revealed, that she is indeed, the only baby in the entire world of 200 years of testing, to be missing part of chromosome 4, so long term, they do not know what’s in store for her. We recently learned that she does have a laryngeal cleft , and distal Tracheomalacia which will require her to be on a feeding tube, until she is big enough to eat and not aspirate. She is being followed by Shriners hospital for children for Hydronephrosis. Thank you for taking the time to read this!
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Kayla Elaine 
Winchendon, MA
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