It is with a heavy heart that Lynn and I write this post.
Mackenzie Lynn Barron, our beautiful 3 year old daughter was just diagnosed with a super rare brain cancer.
Diffuse Intrinsic Pontine Glioma.
She fell about 8 weeks ago and hit her head hard enough that we had to take her to the emergency room. During a routine CT scan, they saw a bright spot on her brain. At the time they didn't know if it was something or just static. They ordered up and MRI that was finally performed on June 15th, 2018.
Lynn and I learned of the diagnoses Yesterday at the MRI reading with the doctor.
The Doctor was visibly shaken while trying to give us the news. As of now, there is no chemo therapy available, no cure, no treatments outside of radiation. Radiation therapy may reduce the tumor, thus prolonging the inevitable.
There are less then 300 children diagnosed with this cancer every year. We were informed that the average expected time is 18 mos.
We go see her Oncologist and radiologist this coming Monday to discuss all options available. We are requesting a second opinion be performed through St. Jude's Hospital.
Our hearts are broken and we need all the prayer and love our family and friends can give. We are so far away and feel so alone, it is unbearable.
Please ask God to look over our Mackenzie and move those mountains.
At this time we request that no phone calls or text messages until Monday evening. Allow us this weekend with our baby girl to make some memories and process this news.
Thank you everyone for your thoughts and prayers
Thomas, Lynn, Noah, Kayla and Mackenzie The BAT BARRON 5