Taylor was referred to the transplant department with Florida Hospital in October 2017. They have been following his health and hospitalizations since then. They have asked Taylor to get certain tests done and Doctors to visit in regards to getting clearded for the transplant process. He has done all they have requested. During this time, he has become more dependent on oxygen to do his daily activities. At his last appointment on January 8th, his Pulmonologist stated that she didnt feel as if was ready to be listed. She also asked for his to get a full PFT completed again so that she could continue to track his progress til his next appointment with her on April 4th. Once he completed his PFT (Pulmonary Function Test), he was contacted by the Transplant Coordinator. The decline in his lung function since October was significant enough that he was to be listed on the National Double Lung Transplant Wating List after a couple more evaluation appointments.
We, as a family, were waiting for the good news of being added to the Transplant list. Except in the months following April, Taylor’s health declined even more. We were then hit with the news that he was now “too ill” to be a good double lung transplant recipient. This news really hit us hard, especially Taylor. He had been working so hard to get all the appointments completed and to do all that they requested of him to do. This began a bunch of hospitalizations for his lungs, kidneys, muscle and spine problems that are still ongoing issues as of today 1.20.19. His Drs have stated that they would prefer that he be in a hospice program to keep him comfortable. Taylor is still fighting so we will keep up the fight with him. He still has so many things that he wants to do so we keep trying to give him fun times when his health gives us a free moment of relief.
His dad & I are both fully employed and know that the day will come that I will need to be by his side 24/7. We have tried to prepare as much as we can, but this is an expensive journey that we can't keep up with daily. We appreciate all the donations so far and they have helped purchase equipment for him to remain comfortable while at home or during his hospitalizations. It has also allowed Jock & I replace pay that we have missed due to being with him during hard times or procedures that he needed us there for.
We are still in need of help and ask that you prayerfully consider continued help for our family.
Any help that you can send our way will be greatly appreciated. Please continue to keep our family in your prayers daily.
Jocko, Stephanie, Taylor & Hannah